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Top 10 Search Results for "beginners mind not knowing it all when living with epilepsy"

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A MyEpilepsyTeam Member asked a question πŸ’­

Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.

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A MyEpilepsyTeam Member

I hope you have a blessed Christmas holiday also @A MyEpilepsyTeam Member

After You Have Been Diagnosed With Your Condition You Have, Are You Ok With That In Your Life Now That You Are Aware Of That Condition?
A MyEpilepsyTeam Member asked a question πŸ’­

I think that I am, i know that there is not a cure for, but I I've accepted mine and it does make it easier knowing what I have to deal with, what do you think and your thoughts about it?

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A MyEpilepsyTeam Member

Learned to live with it. It's great to hear this is being treated just like anything else in life from birth. LEARNED TO LIVE WITH NOT CONTROLLED TO LIVE WITH!

How To Deal With EPILEPSY ?
A MyEpilepsyTeam Member asked a question πŸ’­
A MyEpilepsyTeam Member

Meet Koko

Is There A Medical Expert & Advocate Willing To Answer A Few Questions On Epilepsy Awareness And Removing The Stigma From It?
A MyEpilepsyTeam Member asked a question πŸ’­

I have epilepsy and my son is currently doing a college project to promote epilepsy awareness, remove the stigma of it. He needs an epilepsy medical expert & advocate to contact in the next day or two to answer @ 4 questions for it. He would only need 1 - 2 sentence answers. Any help is appreciated.

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A MyEpilepsyTeam Member

The #1 site
Locally --- www.epilepsy.com

The #2 site, is more for non-medical issues of Epilepsy.

International League Against Epilepsy (ILAE),
www.ilae.org

#3 has some good articles but I… read more

Does Our View Of Being Epileptic Hurt Or Help Our Seizure Control?
A MyEpilepsyTeam Member asked a question πŸ’­

Initially, I was my own worst enemy. Not anymore!

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A MyEpilepsyTeam Member

I agree

Cenobamate
A MyEpilepsyTeam Member asked a question πŸ’­

Anyone on this Anticonvulsant. I'm in UK might be called something different over in US. My son has just reached his last increase. 3 seizures last week during exercise, 2 of them anyway.

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A MyEpilepsyTeam Member

His Cenobamate is at 150 mg once daily. His seizures have improved although he did have 3 the week BRIVIACT stopped. He won't be reading this, he is Autistic and not remotely interested. I am his… read more

I’m Only 18 But This Has Been On My Mind
A MyEpilepsyTeam Member asked a question πŸ’­

Those with epilepsy that had children what was your experience like? Did you have to be off your meds? Was it scary? I know I still have lots of time to worry and decide if I even want a family and Ik I can have the conversation with my doctor when the time comes but share your stories

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A MyEpilepsyTeam Member

I've had epilepsy since 5yo, I have many, many friends who have epilepsy & have gone on to parents & grandparents. Several had concerns at first, but they didn't have any problems & they tell me… read more

Best Dating Sites On The Net For People With Epilepsy.
A MyEpilepsyTeam Member asked a question πŸ’­
A MyEpilepsyTeam Member

That's right VeraBaker! Those that pray together stay together. When you put your trust in the Lord, all things work out for a married couple one way or another.

Do You Have Almost Daily Anxiety About The Possibility Of Having A Seizure? If So, How Do You Cope?
A MyEpilepsyTeam Member asked a question πŸ’­
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A MyEpilepsyTeam Member

This helps tremendously.

Starting A Live Chat Therapy And Need A Name For It.
A MyEpilepsyTeam Member asked a question πŸ’­

Hey team mates I'm stumped I will be starting a live chat on fb soon for epilepsy, weight loss or anxiety I help so many folks I'm having a hard time keeping up with my health issues so I thought this may be a good way to get involved with people who need or want my help. But I need a name for the group anyone have a ideas?

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A MyEpilepsyTeam Member

BECAUSE