Initially, I was my own worst enemy. Not anymore!
I don't think of myself as being epileptic. Yes, I have seizures and have the disease epilepsy but it does not define who I am just like the other illnesses I have don't define me. I don't tell people I have epilepsy or the other illnesses I have, only the medical professionals who need to know.. I even stopped wearing the bracket since no one noticed it anyway. Therefore, it does not control or not control my seizures.
If you ask me who I am I will more than likely tell you I am a writer, do crafts, an a former It professional etc etc. 😉
😃
Maybe one day when I can consider my seizures under control, then I can relax, lol. I have 4 kids and a husband and I spend a lot of my day out of the house and caring for others. If I don’t count my ounces of water, or say no at the McD drive thru while the kids want some nuggets, or force myself into bed at 8 to read and wind down, then it won’t happen.
@A MyEpilepsyTeam Member love your attitude!
My mom had an issue but this was way back in the late 60's I was labeled a moron, not smart but I considered a bump in the road. I just move on and don't let it get me down
As someone who was diagnosed later in life rather than in youth, and diagnosed out of nowhere, there is a denial that you have to get past. The term epileptic represents an acceptance -at least I think so. Also as others mentioned , you don’t want to let epilepsy label you. We want to first be known by all the other things in our life that are important to us. I don’t know that I will ever use the term epileptic for myself. But I do consider my epilepsy in most everything I plan to do. It is a daily thing on my mind. I have to consider how to control my epilepsy. I have to make sure I drink enough water, get enough sleep. Eat well, exercise. I have to consider activities and hobbies, are they safe for me?