Those of you that have had epilepsy for a long time, how often do you need to change medication? Does one work for quite a few years and then your seizures come back, and you have to try a new med? Is it common for people’s bodies get used to the meds?

Lots of us have to stay under controll of others while some dont out of fear or need. Some of us refuse and go about on our own. Either way we all struggle either financially or body function or how we feel. How do all of you feel about your needs and has anyone ever known and taken advantage of you? If not have you ever fealt sheltered and how do you stay free even on your worst days.

What’s your method of traveling with all your meds? Do you take more than what you need? What would you do if they were stolen/lost while out of the country? Anyone ever have to deal with that?

Do you view that you had a good life prior to Epilepsy starting later in life? And do you feel that you are cursed, challenged or simply frustrated by life with all of the seizures and/or all of the side effects of medications, surgeries, implants, etc.? Do you feel that others have ceased judging you as an individual but rather only see you as an Epileptic -- thus in some way abnormal? And for those of you who have had Epilepsy since you were a child and have never had any form of reduction… read more

even if i wanted go out side of my condominium unit ,I feels like I need support or go with somebody
also i wanted to ask you guys do any body when you speak do you feels hard , i mean finding right words to explain that question i wanted to ask

I'm realllly trying to better myself. Alot of things I read and listen to say that your morning routine is what gets you set for the day. Most mornings when I wake up I feel very exhausted and feel the need to move very slow. I want to get past that. I know I freak myself out sometimes thinking I may have a seizure and then I get my heart racing and usually end up having shakes. I'm feeling confident. I need to get back to loving myself

I'm so curious as to what everyone's needs are. I want to see us all get the help, resources and support we need and deserve.

when i was a child (10-16) years old i was prescribed but when i left school the doctors changed my medication. why was this when mysoline was controlling my epilepsy. whilst on mysoline i was having 1 maybe 2 fits aweek but since they change my medication my fits have increased and i am unable to work