i wonder... if we were raised differently or had seizures earlyer/later in live... is that inpacted our lives?

My mother came along with all my appointments through high school and college
- I never really talked about the significant side effects from my medication
- My memory was hit hard after my first Tegretol pill in early elementary school, which made high school and college much, much harder
- I was sexually disabled yet never talked about it with my doctor
- Now at age 45 my brother and sister come along, which makes me not want to talk about my side effects
- 2 weeks after surgery (4 weeks… read more

Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.

1. could it be fear of the unknown?
2. the act of body movements and sounds during an episode?
3. Do they think we are going to die?

I just don't understand it! If these are the reasons I personally can think of many
illnesses that I dont't know much about, there are orher illnesses where people make noises or movements. There are other illnesses that are a higher risk of death.

Epilepsy is 1 word but we all have it but each is different so we understand each other in one way or another but friends who is our friend some cut you dead some you haven't saw in years and family can and are the same me that's stressful and some family cannot cope with epilepsy so how do they think we cope when there's no surrport and understanding but if other way round I help and just be there so that's why all you epilepsy people are stronger and brave so we have to help and support each… read more

i dont want to tell anybody because I am scared somthing is going to happen. My mom and the dad knows and are so excided and so am I but i am scared any advice

I have been very independant all my life wanting to do everything on my own even 22 years after my diagnosis I'm still like this, and it's hard for me to let others who actually want to help me, help me. I push people away. my best friends and greatest support fight back and refuse to let me push them away. but even though I know (now) i cant do this alone and i do have to rely on others i still find myself fighting this struggle to go at it alone.