Everyone (Kids and adults ) are different.

KIDS . Should always have their parents with them. But there are kids who can’t share their thoughts and experiencing, because of their severe form of Epilepsy.the there are the kids that can speak and share their thoughts with the parent to the Dr.

Adults . Adult have different forms of Epilepsy. One is the type that they are aware of their seizures. They don’t need the spouse or family member to follow to you Dr. But, it is good for them of understanding Epilepsy better from your Dr. The Spouse may have questions and advice about your form of Epilepsy.

With myself , I need my wife with me . I am not aware of what most of my seizures and pattern of them are like. I don’t know when my seizures happen. My family and friends are always alerting me when I have a seizure. Because of this, my spouse is always with me to explain my seizures to my Dr.

@A MyEpilepsyTeam Member
Like I said my parents go to all my appointments with me. They know more about me and my seizures than I do. I don’t know what’s going on when I have seizures.

Mentioned Users

A MyEpile...

I grew up with seizures. There was a time that I lived away from my mother and I felt free able to come and go as I wanted. Today I live with my son and his girlfriend and I feel locked up. They say that I'm not allowed to take the bus anymore. They get angry if I go anywhere without telling them. I feel like I'm a child not an adult.

This one is different for everyone.
I understand that I would not be were I am today without all the help and support my mother gave me in this area when I was younger,
But now I go alone.
I am lucky enough to have good relationships with good doctors who have earned my trust and confidence in them.
It is only for this reason that I know I am safe to go alone.
I hesitated this move but finally found the strength to go along when my mother started twisting things the doctors said to me to hurt me emotionally.
Why didn't I go alone sooner.
If you need someone to go with you but no longer feel comfortable going with the party you did before it might be time to change.
Don't get me wrong I still show her papers, ask her questions and seek her advice
Periodically
but now what's said in the Dr's office stays between my doctor and myself.
Everyone's needs are different but being able to talk to your doctor on your own may not be a bad habit to have in your pocket in case you need to be able to do it on another rainy day.

Exactly. Epileptics can be so similar or so, so different. One thing is for sure - it is NOT good if people go to your appointments if they never talk to you personally about your situation. And over the years, that’s exactly how it’s been for me.