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Friends
A MyEpilepsyTeam Member asked a question 💭

Epilepsy is 1 word but we all have it but each is different so we understand each other in one way or another but friends who is our friend some cut you dead some you haven't saw in years and family can and are the same me that's stressful and some family cannot cope with epilepsy so how do they think we cope when there's no surrport and understanding but if other way round I help and just be there so that's why all you epilepsy people are stronger and brave so we have to help and support each… read more

posted January 20, 2023
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A MyEpilepsyTeam Member

I didn’t lose any friends because of my epilepsy, I made friends in school and while I now live 2800 miles away, when we do visit, it’s like we weren’t apart. The friendships I made when I moved to Kentucky, they learned about my epilepsy and saw me through everything that has happened since we met, such as the brain surgery. I can say that they are all true friends. I explained epilepsy and what my seizures could resemble and all was good. 25 years of singing and never had a seizure while performing.

posted January 29, 2023 (edited)
A MyEpilepsyTeam Member

That's great that's true friends

posted January 30, 2023
A MyEpilepsyTeam Member

Oh my Lord and I thought I had it rough not knowing my parents. I'm praying for you. Do that which the Lord wants you to do. He is the light that guides me. Even when others said I'm not able he told me lift my head and go forward. He is my everything.

posted February 7, 2023
A MyEpilepsyTeam Member

The worst part is having a parent not support you through it. As an adult & to this day, my Mom barely ever speaks to me, still tries to tell me I shouldn't or won't be able to do things & questions my choices, like telling me I shouldn't have kids, I should never get married, I would never be able to live on my own, I shouldn't go back to school because I couldn't remember stuff. Mine started at 10 years old & my elementary teacher & school were supportive & I had lots of friends there, but I lived in a rough neighborhood, so I was often bullied, which sometimes lead to fights. Schools weren't educated on dealing with epilepsy in the 80's & 90's, especially how it can affect a person's mood & behavior because mine were from brain tumors that were located in the area that contros you emotions. My Mom was a single parent & put me in DCFS group homes about a year after my 1st brain surgery because she said she couldn't take care of me. When I was close to graduating high school, they made me move back with her even though it wasn't safe. When I was 19 she put me in nursing homes, again claiming she couldn't take care of me. I had another tumor around age 26 & my last 2 surgeries in 2008. Since then, I moved in my own apt March 2009, I've had a child I've been raising by myself very successfully, I worked in home care & went back to college, graduated with a 3.8GPA in NeuroDiagnostics & work at 2 of the best hospitals in epilepsy monitoring units. My 7 year old daughter is more supportive & caring about my health than her & I have many friends who are like sisters & brothers to me & treat me like we're blood. I have retrograde amnesia & barely remember anything about my childhood & to this day, if I ask when was that, her response is that's when you had issues. To downgrade your own child her whole life, that shows she has never been & will never be part of my support system. Family is not always needed & won't always be a good support system. Even though my sister advocates for my Mom, she has been more supportive of me & always tells me she's proud of me. My friends & kid are much more supportive than anybody I know

posted February 7, 2023
A MyEpilepsyTeam Member

Don't feel alone and abandoned there plenty ☺️ of people on here to help and support you we understand and most of us have a problem just be strong don't give up be strong bless you

posted January 23, 2023

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