Connect with others who understand.

sign up log in
Resources
About MyEpilepsyTeam

Connect with others who understand.

sign up log in
Resources
About MyEpilepsyTeam

Epilepsy Awareness: How To Get Involved

Posted on November 01, 2021
Article written by
Anika Brahmbhatt

If you’re living with epilepsy, you’re already aware of the impact the condition can have on your life — but chances are strong that other people in your orbit don’t know as much as they could about the disease. That’s why it’s important to raise awareness for the condition — particularly in November, which is Epilepsy Awareness Month.

It can be hard when your friends and family don’t know what you’re going through. It can also feel difficult to say no to loved ones who don’t understand your situation, because you might worry about how your relationships will be affected.

Raising awareness about epilepsy is important so your friends, family, and acquaintances can better understand how to support you.

Start by Raising Your Own Awareness

Before you can create public awareness by sharing information with others, it’s a good idea to understand the specifics about epilepsy. Learn more about epilepsy’s causes, signs and symptoms, and treatments.

Epilepsy is characterized by recurring seizures that are unprovoked. Epilepsy impacts everyone with the condition differently, but there are ways to control the symptoms. In fact, between 70 percent and 80 percent of people with the condition find that they can control seizures with treatments like medication or surgery.

Share Awareness Resources

After you’re armed with information about epilepsy, you can share it with others. The fastest and least expensive way for this kind of advocacy is through social media. You can post information about epilepsy, share details about the condition, and join communities of other people who are also working to raise awareness about epilepsy.

You can follow the Epilepsy Foundation of America on Facebook, Instagram, and Twitter.

To ensure your messages on social media reach as many people as possible, consider using an appropriate epilepsy-related hashtag, like #EpilepsyAwareness, #ShareMySeizure, or #AimForZero. This way, your posts will be seen by more people who have the same interests, and they’re more likely to share and comment.

Participate in Awareness Activities

Another way to raise awareness about epilepsy is to participate in an activity dedicated to the cause. You can walk or run for epilepsy, play bingo, host a silent auction or fundraiser, or even create a unique event that works for your interests. You can help other people understand more about epilepsy while having fun and raising money for the cause.

If you are able to, you can also donate to the Epilepsy Foundation of America to support epilepsy research and advocacy.

Connect With Others Who Understand

On MyEpilepsyTeam, more than 99,000 people living with epilepsy come together to ask questions, give advice, and share their stories with others who understand life with the condition.

Share your epilepsy journey in the comments below, or start a conversation by posting on your Activities page.

All updates must be accompanied by text or a picture.
Anika Brahmbhatt is an undergraduate student at Boston University, where she is pursuing a dual degree in media science and psychology. Learn more about her here.

Related articles

In partnership with American Medical ID

3 Reasons To Wear an Epilepsy Medical ID Bracelet

In partnership with American Medical ID
Epilepsy is a neurological condition of the nervous system marked by repeated seizures. A...

Seizures and Epilepsy in Children: A Parent’s Guide

Epilepsy is a neurological condition of the nervous system marked by repeated seizures. A...
Nearly 40 percent of people with epilepsy experience at least one urinary symptom, researchers say.

Managing Urinary Incontinence and Seizures

Nearly 40 percent of people with epilepsy experience at least one urinary symptom, researchers say.
Whether you are newly diagnosed with epilepsy or have been living with epilepsy for some time,...

Hiding Epilepsy vs. Disclosing: How and When Do You Tell Others?

Whether you are newly diagnosed with epilepsy or have been living with epilepsy for some time,...
Many people worry about their ability to continue driving after receiving an epilepsy diagnosis....

Driving and Epilepsy

Many people worry about their ability to continue driving after receiving an epilepsy diagnosis....
People with epilepsy may be eligible for additional doses of the Pfizer and Moderna COVID-19...

Are People With Epilepsy Eligible for Moderna and Johnson & Johnson Booster Shots?

People with epilepsy may be eligible for additional doses of the Pfizer and Moderna COVID-19...

Recent articles

Epilepsy treatments — including surgical interventions — have become more advanced and effective...

Minimally Invasive Epilepsy Surgery: Cutting-Edge Treatments

Epilepsy treatments — including surgical interventions — have become more advanced and effective...
Attention deficit hyperactivity disorder (ADHD) is a neurodevelopmental disorder, meaning it...

ADHD and Epilepsy: What’s the Connection?

Attention deficit hyperactivity disorder (ADHD) is a neurodevelopmental disorder, meaning it...
Although epileptic seizures can occur randomly and without warning, many people find that their seizures are caused by specific triggers.

10 Common Seizure Triggers and 9 Tips To Avoid Them

Although epileptic seizures can occur randomly and without warning, many people find that their seizures are caused by specific triggers.
The U.S. Food and Drug Administration (FDA) has approved updated boosters for messenger RNA...

New COVID-19 Vaccine Boosters for Omicron: What To Know if You Have Epilepsy

The U.S. Food and Drug Administration (FDA) has approved updated boosters for messenger RNA...
Epilepsy is one of the most common neurological disorders in the world. There are more than 50...

Photosensitive Epilepsy: Symptoms, Causes, and Treatment

Epilepsy is one of the most common neurological disorders in the world. There are more than 50...
Seizures happen when there is a burst of abnormal electrical activity among neurons, which are...

What Happens to Your Body During a Seizure

Seizures happen when there is a burst of abnormal electrical activity among neurons, which are...
MyEpilepsyTeam My epilepsy Team

Thank you for subscribing!

Become a member to get even more:

sign up for free

close