Connect with others who understand.

sign up log in
About MyEpilepsyTeam

Connect with others who understand.

sign up log in
About MyEpilepsyTeam

Your Answers: The Worst Epilepsy Advice (Infographic)

Updated on November 13, 2016

We asked and you answered! We posted this question: What bits of "advice" do you wish people would stop telling you? and hundreds of you took the time to respond.

What did we learn? From the unconcerned ("It's all in your mind") to the plain unhelpful ("Just don't stress"), advice is hurled at us from friends, family, coworkers, even strangers. While most suggestions are probably well-intentioned, hearing them over and over can make us feel that our condition is minimized and misunderstood.

Some of the most common answers we heard:

  • It’s all in your mind.
  • If you’re stressed, lay down.
  • Can’t you use marijuana for that?
  • Calm down.
  • Try to stop shaking.
  • You don’t look like you have epilepsy...
  • Did you take your pills?
  • You should get a job
  • Just don’t stress

Everyone's situation is different and not all of these apply to each person. Tell us: What advice about epilepsy do YOU wish people would stop telling you?

All updates must be accompanied by text or a picture.

Related articles

Epilepsy is a neurological condition of the nervous system marked by repeated seizures. A seizure...

Seizures and Epilepsy in Children: A Parent’s Guide

Epilepsy is a neurological condition of the nervous system marked by repeated seizures. A seizure...
Nearly 40 percent of people with epilepsy experience at least one urinary symptom, researchers...

Managing Urinary Incontinence and Seizures

Nearly 40 percent of people with epilepsy experience at least one urinary symptom, researchers...
Whether you are newly diagnosed with epilepsy or have been living with epilepsy for some time,...

Hiding Epilepsy vs. Disclosing: How and When Do You Tell Others?

Whether you are newly diagnosed with epilepsy or have been living with epilepsy for some time,...
Many people worry about their ability to continue driving after receiving an epilepsy diagnosis....

Driving and Epilepsy

Many people worry about their ability to continue driving after receiving an epilepsy diagnosis....
People with epilepsy may be eligible for additional doses of the Pfizer and Moderna COVID-19...

Are People With Epilepsy Eligible for Moderna and Johnson & Johnson Booster Shots?

People with epilepsy may be eligible for additional doses of the Pfizer and Moderna COVID-19...
If you’re living with epilepsy, you’re already aware of the impact the condition can have on your...

Epilepsy Awareness: How To Get Involved

If you’re living with epilepsy, you’re already aware of the impact the condition can have on your...

Recent articles

Epilepsy affects approximately 3.4 million people living in the United States. Though most types...

Catamenial Epilepsy Explained

Epilepsy affects approximately 3.4 million people living in the United States. Though most types...
If you are living with epilepsy, you know that your symptoms include so much more than epileptic...

4 Mood Disorders Associated With Epilepsy

If you are living with epilepsy, you know that your symptoms include so much more than epileptic...
The U.S. Food and Drug Administration (FDA) has approved updated boosters for messenger RNA...

New COVID-19 Vaccine Boosters for Omicron: What To Know if You Have Epilepsy

The U.S. Food and Drug Administration (FDA) has approved updated boosters for messenger RNA...
The brain contains billions of nerve cells — called neurons — that communicate with one another...

Can Seizures Cause Brain Damage?

The brain contains billions of nerve cells — called neurons — that communicate with one another...
A seizure is caused by abnormal electrical activity in the brain. The person having a seizure...

Subclinical Seizures: Symptoms, Causes, and Treatments

A seizure is caused by abnormal electrical activity in the brain. The person having a seizure...
Seizure clusters are typically defined as an increase in someone’s usual number of seizures over...

Seizure Clusters Explained

Seizure clusters are typically defined as an increase in someone’s usual number of seizures over...
MyEpilepsyTeam My epilepsy Team

Thank you for subscribing!

Become a member to get even more:

sign up for free

close