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Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.
I hope you have a blessed Christmas holiday also @A MyEpilepsyTeam Member
I’ve had weird uncontrollable movements for months that don’t show on my EEG. My seizures still happen often luckily they’re usually partials. But the spasms scare me, i’m always snapping my fingers without realizing and other weird things. So i was just curious if anyone suffered from this and had any knowledge on it because i may bring it up to my doctor. Nothing is being solved
I was on three medications, My Epileptologist recognized right away and gave me a cardiac medication at a low dosage. It stopped it. I was very happy but my husband was happier, too!
I would first get a hold of a local Epilepsy Foundation and find out directly by them , if it’s possible or schedule a planned meeting with them in your rural area. Maybe they can refere you to… read more
What is everyone doing for Epilepsy Awareness Month? I have my bracelet, pin, and shirt that says “Epilepsy, shaken, not stirred”.
Love it!!
Since I've moved to Australia I've been taking generic keppra and lamictal. I took the same medicine in the USA, but I'm feeling some intense side effects from the generic medicine here. My friend that's a pharmacist said it could be from fillers that are used in the medicine. I'd pay for the name brand but it's very expensive. And then the stress from the financial strain can cause a seizure. Anyway, could there be something in the medicine that I'm not aware of?
All of my meds are in generic my insurance will not paid for brand name
I'm creating a group on Facebook but I don't know what to call it. Has anyone got any ideas? It is a group for epilepsy.
@A MyEpilepsyTeam Member No kidding about the disability...making it stretch is not easy!
Mine are now called Partial Awareness, used to be called Absence, and Partial Complex.
I also have informationto share about information for Teachers about Epilepsy. I hope you will share this with many. I do not know how to share with my entire team yet
https://www.epilepsy.com/sites/… read more
I have found lately that after a seizure I am so much more sensitive to criticism and to well basically anything emotionally draining.
Am I the only one?
I'm hoping this is normal!
I feel you
Does anyone else ever get tired of hearing about cancer? Like no other disease exists for funding?
so the thought just came to me. you know they don't do lots of awareness on us. just give us pills or different surgeries on us? WE'RE LAB RATS!! see with diabetics its sugar. simple. cancer, its… read more
How does anyone who is a full time parent get by with epilepsy and the fear of having one by yourself with just your child. I have grand mal and partial seizures. I'm to scared to have another child because I'm scared I shouldn't be a mother because of my epilepsy. I've recently also had brain surgery. So I have had a lot of help since my son was born. It's hard to feel like a mother
Is anyone else in this position or know how it feels? My parents help us but they are now in their 70's. They… read more
@A MyEpilepsyTeam Member I wasn't worried about my Pregnancy or my Son having the same Condition that I have b/c at the time my Doctor was in the Houston Medical Center which has some of the best… read more
