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I have had stitches on forehead, nose and lips because of the falls from Epilepsy. Epilepsy can caused dangerous injuries so no one should undermine how much damage can be done which this disability.
@A MyEpilepsyTeam Member You are welcome to talk about your experience of epilepsy of course but do not, and I seriously mean DO NOT, preach to others who are going through tough times with their experience of the condition. Your experience is unique, very unique, you offer no support to people here, you belittle the psychological effects the drugs and having the condition has on people. You don't realise there are people suffering 24/7 with this, there's no empathy in you.
Exactly what support do you give others? You only hear your voice - we only hear your voice and it's so far from my realm of understanding how a person can be so devoid of emotion towards others when reading their posts that I have to say something. Telling a person such as @A MyEpilepsyTeam Member when they're at their lowest point that there's worse things is one of the most cold-hearted things to say, I'm not going to stand for that. This is a support group.
@A MyEpilepsyTeam Member I read somewhere that you stated you'd a 'high IQ'..personally I don't see it, I don't know if possible side effects of meds are desensitisation, you've got it. Diabetes can be well controlled through diet and insulin plus visits to gp and bloods, some diabetics aren't even insulin dependent, just have to look after their diet and weight - once this is successful, they can become diabetes free.
Insulin diabetes 1 is a lifetime condition and can affect organs but the person can control it, alot of it is up to them.
To use such language as 'drop down, tongue biting types of seizure' demonstrates your lack of knowledge of epilepsies, you're only familiar with your own experience.
To say that epilepsy isn't a big deal demonstrates your lack of knowledge of epilepsies, you're only familiar with your own experience.
To say that people don't suffer with depression, anxiety and fear demonstrates your lack of knowledge of the epilepsies, you're only familiar with your own experience.
To say that meds do not have an effect on a person demonstrates your lack of knowledge, you're only familiar with your own experience.
To say that any meds taken during pregnancy do not have an effect on women demonstrates your lack of knowledge, you're only familiar with your own experience.
To say there's 'a bright' side to epilepsy demonstrates your lack of knowledge, you're only familiar with your own experience.
To even refer to people that have joined the site as they've recently been diagnosed with epilepsy as 'newbies' demonstrates your lack of empathy, compassion, caring and support.
You are living in YOUR world of epilepsy, not everyone else's, and you don't wish to hear anyone else's voice but your own so why be here?
@A MyEpilepsyTeam Member I saw that..don't worry, I'm always watching out for her posts to make sure she doesn't belittle anyone and what they're dealing with.
Oh @A MyEpilepsyTeam Member tell your friend to come off her anxiety meds re her diabetes, it's all in her head.
HAVE RESPECT FOR PEOPLE.
@A MyEpilepsyTeam Member my mother said a few years ago that, after I'd been diagnosed at age 11/12, she remembered I had an incident like that when I was about that age - she wondered then if my epilepsy had actually been there since birth and there were signs but went unnoticed.
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