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Sun light bothers my epilepsy seems to trigger them I have staring seizures sorry I don't know the name of the type of seizure does anyone else have that problem?
Sounds like you’re experiencing photosensitivity seizures and Peti Mal seizures
My daughter has been diagnosed with Jeavons Syndrome. We are waiting to see the neurologist and I can find hardly any information on this rare type of epilepsy.
@A MyEpilepsyTeam Member
What is :
"Mad diet"?
My last seizure was in June 2015 due to lack of sleep and stress. I never have issues with strobe lights however I see warnings alot lately about them at Universal Orlando and The Watchman series.
Totally agree with BryanMartin. The lights effect some people and not others. It’s great to see these types of warnings are now happening. Keep well.
Worrying myself to death as my son recently had a seizure due to unknown causes. I have photosensitivity epilepsy
I was the only person who has had seizures all my life. Mine was caused by the doctor using forceps to pull me out. My son has never had seizures.
I don't want anyone to look this up I want all of my epilepsy family to tell me honestly right here and now if you have ever been told by your neurologist to get any kind of glasses with a special tint that will help you not have seizures??? Because I have not.
I have light sensitivity in my eyes my prescription glasses and tined dark all the time u also where a regular pair for night when dark but most if the day I have the dark tinted ones on i had him… read more
I used to have sunlight filtered through leaves triggering seizures. Had to get prescription sunglasses to wear outside, which helped greatly. I agree with what Randy said. You'll probably find… read more
I used to have myoclonic seizures all the time, but they are controlled now. could there be a link between seizures and the thyroid?
maybe... question, what's your trigger? food seizures, photosenitivity, concussion, ect? maybe when you took out the thyroid, everything went haywire. that or the thyroid was protecting something and… read more
I don't have those issues and I wear prescription glasses. Last pair are light sensitive and darken like sunglasses when exposed to light.
I have been seizure free for 2 years but had a cluster on Monday. I haven't been sleeping well due to hyperstimulation of screens. We are all spending so much more time on screens (thanks COVID!) I am wondering whether anyone else has noticed an increase in seizures because of increase of screens.
Okay. My most recent was a single and the prior 3 i had 2 per day. What a strange condition.
Curo sunglasses are cobalt blue and look like they would match the Zeiss Z1 blue lenses. Would they be a good replacement? It is hard to find the proper blue lenses in the US.
Zeiss Z1 blues lenses.. helps protect from Photosensitivity
