If you’re living with epilepsy, you may be interested in options that could help limit seizure triggers. While anti-seizure medication is the main treatment for photosensitive epilepsy, there may also be other things you can do — including trying special eyewear called epilepsy or anti-seizure glasses.
“Has anyone ever heard of anti-seizure glasses before?” asked one member of MyEpilepsyTeam.
These glasses do exist. Researchers have studied several types of colored glasses for people whose brains react adversely to flashing lights or high-contrast patterns and who experience seizures triggered by them.
Epilepsy glasses are specialized glasses that may reduce the risk of visually triggered seizures for some people with photosensitive epilepsy. They’re not likely to help people whose seizures aren’t triggered by lights, screens, or visual patterns.
Glasses also don’t guarantee seizure prevention. They’re best thought of as an add-on to prescribed treatment, trigger management, and a safety plan you create with your healthcare team.
Photosensitive epilepsy is a type of reflex epilepsy in which seizures can be triggered by visual stimuli, such as flashing or flickering lights, strobe lights, or strong, repeating patterns. About 3 percent to 5 percent of people with epilepsy have photosensitive epilepsy, and it appears to be more common in women than men, according to Epilepsy Action.
Neurologists may use an electroencephalogram (EEG) to check for photosensitivity. An EEG can show a photoparoxysmal response (PPR) — an electrical response to flashing lights or other visual stimuli — but a PPR isn’t the same as having an actual seizure. Diagnosis also depends on a person’s clinical history.
People with photosensitive epilepsy can have different seizure types, including:
Triggers can include strobe lights at concerts or clubs, camera flashes, flickering light bulbs, sunlight through trees or blinds, rotating blades, and patterns such as stripes or zigzags.
Screens also can be a concern. Newer televisions and flat-screen monitors generally have less visible flicker and are less likely to trigger seizures than older screens, but flashing online content, video games, or animated patterns can still pose a risk. If screens are a trigger for you, tips for safer screen time may help.
Flash rate matters, too. A light may be most likely to trigger a seizure if it flashes or changes color 10 to 25 times per second, although some people may be sensitive to lights that flash as slowly as three times per second or as quickly as 60 times per second.
Epilepsy glasses are usually designed to change the amount, color spectrum, polarization, or intensity of light before it reaches your retina, blunting the neural impact of sudden visual shifts. Dark lenses can reduce brightness, polarized lenses may reduce glare, and some colored lenses filter out parts of the light spectrum that may be more triggering for some people.
Some guidance also recommends covering one eye and turning away if you’re suddenly exposed to a possible visual trigger because light that reaches both eyes is more likely to trigger a seizure. Don’t close your eyes in front of a flashing trigger because that can create a flicker effect.
The effectiveness of epilepsy glasses depends on the type of glasses, the color and strength of the lens, and the person using them. Some lenses can reduce abnormal EEG responses to visual triggers, but that doesn’t mean they completely prevent seizures in everyday life.
A 2006 study looked at a deep blue lens called Z1 in 610 people with photosensitive epilepsy. The Z1 lenses made PPR disappear in about 76 percent of participants and reduced PPR in another 18 percent. These results describe only EEG responses, not the percentage of people whose seizures were prevented.
Some MyEpilepsyTeam members have had positive experiences with these lenses, too. One shared, “I had a friend (an optometrist) get his Zeiss representative to get me some goggles made with the Zeiss Z1, and so far I’m happy. … I’ve only been to one serious light show (strobes and all). I couldn’t look AT the strobes, but if I shaded my face with a ball cap or turned backward, I was fine. I lasted the whole show.”
Other research has been more limited. One older study of colored glasses found that 23 people reported benefits and were prescribed glasses. At follow-up, 13 of 17 people said they still used the lenses, but only three people had seizure reduction that could reasonably be linked to the glasses.
Another small study found that blue sunglasses reduced PPR during red flicker stimulation in six people tested.
Newer research supports a more individualized approach. In a preliminary study of 19 people, Z1 lenses showed the highest rates of PPR reduction or disappearance, but some newer blue lenses may be more tolerable for certain people.
Some MyEpilepsyTeam members have found that tinted glasses, regardless of color, improve their symptoms. As one said, “My glasses have a tint on them, which really has helped.”
Zeiss Z1 F133 lenses are dark cobalt blue lenses that filter red light wavelengths and reduce overall brightness. Red light can be especially triggering for some people with photosensitive epilepsy, which may help explain why Z1 lenses have performed well in studies.
Still, Z1 lenses shouldn’t be considered the best option for everyone. Different people may find different colors and strengths helpful, so ask an epilepsy specialist or optometrist whether lens testing could help you choose the right lens specifications.
Z1 lenses are not suitable for driving because they block red light, making red or amber signals difficult to see. If you use any tinted or dark epilepsy glasses, ask your doctor or optometrist when and where they’re safe to wear.
Strobe lights at concerts, clubs, and raves can trigger seizures in some people with photosensitive epilepsy. Some people search for specialty rave glasses for epilepsy before going to these events, but glasses shouldn’t be your only safety step.
Glasses should be paired with venue inquiries and careful environmental positioning. Before a concert or rave, consider asking the venue whether strobe lights or flashing effects will be used. You might also plan where to stand, avoid looking directly at strobes, wear a brimmed hat, go with someone who knows your seizure first aid plan, and leave if the lighting feels unsafe.
If you choose to try epilepsy glasses, remember that they aren’t designed to replace your epilepsy medication. Medication and avoiding seizure triggers are common ways to reduce photosensitive seizures, and glasses may be one extra tool.
Work with your healthcare team to decide on a protocol for when to wear them and how to monitor your symptoms. Some people may use glasses only around flashing lights, screens, or bright outdoor glare. Others may need a different plan.
Because glasses may not be completely protective, don’t ignore known triggers. Your doctor may ask you to track seizures or symptoms with and without glasses to see whether they’re making a meaningful difference and to bring these logs to the next medical review.
If your epilepsy is triggered by screens, changes in lighting, or patterns, talk to your neurologist. Frequent seizures or seizure symptoms may mean that your treatment plan needs to be adjusted.
Your neurologist may also help you decide whether epilepsy glasses belong in your care plan. A healthcare professional can help you weigh possible benefits, safety concerns, cost, insurance coverage, and other ways to manage common seizure triggers.
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Jim I just had my eyes checked and got a new prescription and I’m going to get some blue lenses too, bc I have seizures when I watch tv and when I mess with my cell phone…basically it seems I have… read more
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