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For over 13 yrs I was diagnosed with epilepsy…vacant seizures. My last seizure was last February and I haven’t had any for 7 yrs. I fainted last August and last week. I had a test echo on my first event that was ok . I had a pacemaker installed 13 yrs ago but it’s fine. The tilt test says I had slightly low blood pressure . I have a follow up call with the consultant next year. As I’ve fainted this will probably make me lose my job due to ill health. This situation has gone on for 15 months as… read more
I generally get like this sometimes. Generally, I will get light headed then will just get to a point where I need to sit down. Generally, not drinking enough water, heat and just overworking yourself… read more
In case things need to be reported since there is no place to send private messages at ?
You’re welcome
I am looking for some assistance with graphics, in particular. I have the program set up to draw the rudimentary 20X20 grid, including the two cities which are at war with one another. Each city… read more
Well! That depends on my mood lol 🤩
Well, I have a dark sense of humor, so I'm not averse to a bit of schadenfreude, and laughing at things a lot of people wouldn't find funny. Indo have my limits though. Just as there are some things I… read more
My labs showed almost zero of both in my system after the seizures. This is common with me. Is it with anyone else
depends... the meds you are takeing or begining of the a high low carb dietthere is many ways to do this (like keto or actkins or ect). ether way you need supplments for that. besides foods that… read more
Does anybody go to support groups for epilepsy? Sometimes I feel so alone. I like that I'm treated "normal" but sometimes ppl forget I do have limitations.
i remind others the only time I have limitations is when I put them on myself(feeling sorry for myself) or if the doctors keep me limited in some way.
That's wonderful to hear @A MyEpilepsyTeam Member
I'm planning on having the temporal lobectomy surgery next month. What is the expected timeline of feeling better? My doctor said 5 weeks but I am interested to hear what that means. Does that mean in two weeks you felt better enough to go out or not need assistance or did it take longer? Thanks!
These are the kinds of things that cause my seizures, how common are they with everyone else? I'd like to know what triggers your seizures:
- Time spent on electronic devices
- Medication not taken on time
- Not enough sleep or rest
- Going to bed late
- Not drinking plenty water
- Not eating healthy
- Getting to hot
- Reading to much
- Showering late at night
- Dust on clothes or in the house
- Infections like cold or flu
- Certain foods
- Bright or flickering lights
- Stress
Most my seizures that I have I don't know of. If do notice them it's lack sleep causes me seizures easy, If I have others the only way I notice things moved which is also rare.
I don’t know when I have or going to have a seizure I get no warning at all but I have tried cutting out certain foods/not looked at certain lights all the common triggers but I’m trying to think outside the box and every time I do my mind goes blank has anyone got any suggestions? But then I think could the answer be closer to home?, I do take medication also I have tried nearly all the common epileptic drugs out there and just want an answer/opinion.
Thank you in advance.
My son was in the emu also for 5 nights. It is not much fun as they wean you off your meds until you have a seizure. You are hooked up to monitors and video. It was helpful to her the info from it as… read more
