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Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.
I Was on Topomax and it had some side effects that were tolerable … Stay strong in time you might be thankful 🙏 🙏
Hello! Does anyone here have migraines that they think are linked to their epilepsy but feel they may have been misdiagnosed. I do not think they are two seperate
Issues. I have an auora, i get a severe migrane, If i cant get it under control it Almost always leads to a seizure inevidebley. If so. What are they doing for you?
Hey, I get migraines constantly and it's usually followed by a nocturnal seizure which I didn't notice until a few months back. I had one last night which eased the pain from the migraine but left me… read more
I had migraines since I was 12 years old - 3 to 4 / year at random times. Some migraines would last a couple of hours and every other year one would last 2 days. I also had the auras before all migraines. I had my first seizure 4 years ago. All of my seizures have been nocturnal. Again at random times and about 3-4 per year. I am not aware I have them but my wife says they are "bad" and I always wake up sore and my tongue is bitten and occasionally I do wet myself. Question is that since… read more
There is a relationship between migraine and seizures. Dr Oliver Sacks wrote a book “Migraine” and coined the term “migralepsy. “.
Can I ask
My epilepsy is of a sleep only related type
Sometimes referred to as nocturnal epilepsy. I have never had one when awake.
Does anyone else within the group have the same and then find it extremely difficult to get work and others that epilepsy variants of this type have totally different legislations on them.
If proven sleep only we in the United Kingdom are still entitled to a driving licence, even if we continue having sleep only related seizures, do not have to surrender our… read more
I can understand as some days after having my sleep seizures it can knock me backwards
Yesterday was a full on migraine and I did not recover till later afternoon
I’ve had mine for 41 years but… read more
Has anyone who was diagnosed later on in life with epilepsy had migraines that started at the same time. I never had a migraine in my life and since my first seizure I’ve had constant migraines which are mostly under control with propranolol but any change in dosage and I’m crippled with migraines for days.
Has anyone else been in this situation?
Does anyone have migrainesdoes migraines affect anything with epilesy
I have had them now for two days . I have had epilepsy for over 35 years migraines can be brutal at times .I am laying in the dark in my room right now.
Sometimes not all the time.
Since I've moved to Australia I've been taking generic keppra and lamictal. I took the same medicine in the USA, but I'm feeling some intense side effects from the generic medicine here. My friend that's a pharmacist said it could be from fillers that are used in the medicine. I'd pay for the name brand but it's very expensive. And then the stress from the financial strain can cause a seizure. Anyway, could there be something in the medicine that I'm not aware of?
All of my meds are in generic my insurance will not paid for brand name
I had an aura before I started my shift then I had a migraine straight after is it a simple partial or aura I'm confused
KatMarron, you give a good starting point. The more research someone goes through the better base developed. However, don't believe everything read. This question is difficult to answer because of a… read more
I have found lately that after a seizure I am so much more sensitive to criticism and to well basically anything emotionally draining.
Am I the only one?
I'm hoping this is normal!
I feel you
