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Developing Migraines Because Of Seizures
A MyEpilepsyTeam Member asked a question 💭

Has anyone who was diagnosed later on in life with epilepsy had migraines that started at the same time. I never had a migraine in my life and since my first seizure I’ve had constant migraines which are mostly under control with propranolol but any change in dosage and I’m crippled with migraines for days.
Has anyone else been in this situation?

posted July 6, 2021
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member That doctor is an excellent example of why we get second opinions from other doctors.

In my case, back in 1980 - 1984 my seizures started (fainting spells), the doctors get a pass because they were focused on my heart because my older brother had to have open heart surgery as a new born.

However, in 1992, when I went to a neurologist in Taunton, MA and gave him some examples of seizures that were witnessed by family, friends and co-workers, he told me that because I was not losing consciousness, they were not seizures. This is amazing since the most common type of seizure that people with Epilepsy or a Seizure Disorder get is Complex Partial Seizures (or what they renamed them: Focal Onset Impaired Awareness seizures).

He told me that I was having Panic Attacks and sent me to a psychiatrist who in turn assigned me to one of his psychologists to work with me. And this was a major plus because my psychologist that I worked with there taught me meditation and how to distract myself to calm myself, the same training that he would give people with a fear of flying before they have to go up in an airliner.

He also explained to me about the fact that one of the reasons for insomnia is when a person cannot get the brain to shut down from thinking (problem solving topics that are going through your head before you went to bed). This was the primary reason for my insomnia back then and the only reason for it now. It is just a matter of getting up and reading or doing something to get my brain to focus on just it and then at some period after that I will get tired enough that I can go lie down and go to sleep.

posted August 31, 2021
A MyEpilepsyTeam Member

Yes an EEG will let your neurologist how to medicate you, cut out any drinking and illicit drugs even caffeine and too much sugar can contribute to epilepsy, eat healthy and get a little exercise and a regular sleeping habit, these aren't all the answers but I've been doing these things and they have all helped me, start vitamin D3 5000iu if you aren't already taking it, do the research, it's not easy but stay confident, seizures will cause emotional issues so prepare yourself in your mind, it's not your fault it's happening.

posted July 7, 2021
A MyEpilepsyTeam Member

I have migraines until they put me on Toprimax which functions as both an anti- epileptic drug and a migraine medication.It is doing miracles for me.

posted July 6, 2021
A MyEpilepsyTeam Member

I’m in exactly the same position lovely!! I was diagnosed as an adult with epilepsy and it’s only been the last 7 years or so that I’ve developed horrid migraines, luckily I can contain them most of the time with Sumatriptan. Take care lovely xx

posted December 2, 2021
A MyEpilepsyTeam Member

I haven’t had a migraine in a week now. My body has built up the propranolol so I’m pain free. Honestly it’s the biggest relief. It sucks that even when I don’t have a seizure I have a headache or migraine. I’m just grateful that I have my relief again

posted July 20, 2021

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