Does anyone who is single find it hard to find that special someone who understands you and what living with epilepsy is like.
It seems to me that as soon as you say epilepsy people run a mile.
Maybe it's me or the fact they don't understand it or scared?
I had some bad relationships, before I found my husband of 18 years. Don't give up. I almost did. I was 40 when we walked down the aisle. Yes we lived together first, he is 7 years younger and I… read more
You see people who make fun of people with grandmal seizures or use them in their pranks.
So how would you go about making them understand what its like to live with epilepsy and what its like in those moments? When i think about how i would go about i can honestly say I dont know and I dont know if i could ever make them understand because they dont walk in my shoes or anyone elses shoes with epilepsy
https://mail.google.com/mail/u/0/?ui=2&ik=c... 53024&ser=1
I just found this from the Epilepsy Foundation. It first includes First Aid for Epilepsy, then a booklet for Teachers about Epilepsy. I… read more
Like when people don’t understand what you’re going through. Won’t give you more advice 😢😢😢ðŸ˜ðŸ˜ðŸ˜
I agree, my advice and how I handle it is with my lord and God and pray, I do try and handle some by myself but that is my answer, and don't let others bring you down, they don't understand what you… read more
What do you think that could be made available to you that would help you better?
Eating and getting out.
I'm finding it hard to keep a relationship due to epilepsy I'm afraid to tell them incase they run or get freaked out over it. It's frightening any advice
When I first started dating the man I eventually married, I didn't tell him immediately. I probably told him on the third or fourth date. I'm sure your need to share the info could depend on how well… read more
Why do I keep on having myoclonics sometimes when I'm asleep or just taking a nap? I just want it all to go away.
I’ve noticed myoclonics in non epileptics when they fall asleep also.
I know it sounds stupid, but I am starting to forget things more things and I am scared. My husband and others make me feel bad sometimes because I tell them things and they say I know that, you told me yesterday.
It doesn't sound stupid. Yes it's easy to get tired of them. Especially if they got everything to say and don't listen.
can you get panic attacks with epilepsy? is anxiety part of epilepsy? i have anxiety everyday mild panic attacks if and the fact that it feels like my heart is literally going to beat out of my chest is scary on its own its all weird and i get these tics but they are actually more like jerks and sometimes i can be sitting down and my body just jumps like i was scared or something my daughters doctor asked me if i was ok because i was sitting still then i just jerk or whatever you call it
Does anyone have seizures and just want to be quiet for a few days afterwards. The reason I ask is I have had a bad seizure at the weekend and my in-laws have been down today yet my father-in-law wants to be all jokey and they wonder why I am quiet.
Ye, occasionally, I try to keep it at a medium balance, but ye sometimes I prefer to be by myself and am ok with, no offense to anyone, but my opinion
I have been very independant all my life wanting to do everything on my own even 22 years after my diagnosis I'm still like this, and it's hard for me to let others who actually want to help me, help me. I push people away. my best friends and greatest support fight back and refuse to let me push them away. but even though I know (now) i cant do this alone and i do have to rely on others i still find myself fighting this struggle to go at it alone.
Thank you so much. I have been throwing two cumm in my life.