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Top 10 Search Results for "has anyone had or has seizures that start with a severe thumb cramp"

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Has Anyone Tried Cefaly?
A MyEpilepsyTeam Member asked a question 💭

I had an appointment this morning any my neurologist told me about Cefaly. I have terrible migraines and its a non medication treatment- both to prevent and rescue. Im doing a little bit of research of my own along with all the information he gave me.

Www.cefaly.com

A MyEpilepsyTeam Member

No

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Fully Favorable
A MyEpilepsyTeam Member asked a question 💭

I received a letter from SSDI that the judge is 'fully favorable' about my hearing. Can anyone tell me what to expect? Im not sure what this means, i talked to my lawyer and i dont need to do anything. I had posted this the other day but not thinking i didnt post as a question so sorry for the repeat!

A MyEpilepsyTeam Member

I went on disability when I was pregnant. My work got me assigned after having the payments for pregnancy. They got in touch with all my physicians. I have partial complex sz w/ generalized seizures… read more

Twitching For Hours And Tey Are Not Sezures.
A MyEpilepsyTeam Member asked a question 💭

I have twitching that goes on for hours. Instense deja vu for even longer afterward. I had epilepsy surgery 3 years ago and these new episodes started a year ago. Has anybody had similar experiences after surgery?

A MyEpilepsyTeam Member

I had surgery in 2008 and have been seizure free since, i do not have sensory sensory seizures tho where it feels lie my left hand and foot is moving like im having a seizure but im looking right at… read more

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SSDI Backpay
A MyEpilepsyTeam Member asked a question 💭

Whats anyone or everyones experiences with SSDI backpay? Ive struggled years to get a favorable decision and am so so thankful! But now seems like they're putting me off, keep telling me they're sending messages to the payment center when i call them. Its not leading anywhere. I called my lawyer and spoke to the paralegal she advised mento wait another 2 weeks and call them back. Thank you all!

A MyEpilepsyTeam Member

We didn’t when my husband got his, but that was back in 2017

What Is The Recovery Time After An SEEG?
A MyEpilepsyTeam Member asked a question 💭

My doctor is wanting me to complete step two the seeg to see if they can figure out were my seizures are coming from as they don't understand why have been still having seizures after having brain surgery when I was 14 were they removed my right temporal lobe and as I've had a VNS. Their trying to see if I can qualify for the RNS.Part of me just wants to change my VNS battery

A MyEpilepsyTeam Member

I keep trying and trying help the Lord's help I will get there. 🙏🏻

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Does Anyone Else Have NES/ Dissociative Seizures?
A MyEpilepsyTeam Member asked a question 💭

I struggle with my mental health and my seizure activity doesn't show up on EEG. I have full tonic clonic seizures, I lose consciousness and seize for about 2 minutes typically. I dissociate first, You could ask me my name and I would not be able to answer. Its short bursts of dissociation almost, where I can be talking and then lose what I'm saying and the thought just shuts off entirely and then I will regain awareness after a bit, usually have multiple short dissociative episodes, sometimes… read more

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Thats pretty much how i feel, just disconnected from my body, unable to speak or process whats happening. I can't respond to anything or sometimes will get an unconscious… read more

Emotional Support Dog
A MyEpilepsyTeam Member asked a question 💭

For those of you that have, how did you go about getting permission from your Dr to have a pet in your home if needed if you're renting?

A MyEpilepsyTeam Member

I don't have an emotional support dog & my seizures ,like Maureens,aren't manageable.

Disability Hearing
A MyEpilepsyTeam Member asked a question 💭

Just found out after many denials and appeals i finally have my SSDI hearing coming up in November. I do have a disability lawyer so im relieved there, but i was wondering if anyone could guide me some on what they've experienced. Mine will be online of course with corona. Im trying to stay low stress about it and sort of prepare also. Thanks everyone!

A MyEpilepsyTeam Member

Just moved to Ohio because uc health top Tennessee got my disability 👋

ASPARTAAM And Epilepsie?(aspartame)
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I have found Stevie to be a nice replacement.

If Youve Dealt With Epilepsy Your Whole Life, How Do You Know What Healthy Feels Like?
A MyEpilepsyTeam Member asked a question 💭

Youre supposed to be prepped when going to the dr but what if you are always and have been (exhausted, anxious, seizures, depressed, diet problems, medication side effects, pick anything) so its your norm and dont realize its something to address? What tricks are there to tell them everything not leaving anything out.

A MyEpilepsyTeam Member

Steve Price
Doing my best to stay as "Healthy as Possiblle"
Also eating things that won't bring on any pain to my joints
Try to have only two slices of bread a day, I eat eggs & protein.
Suffer… read more