I had an appointment this morning any my neurologist told me about Cefaly. I have terrible migraines and its a non medication treatment- both to prevent and rescue. Im doing a little bit of research of my own along with all the information he gave me.
I received a letter from SSDI that the judge is 'fully favorable' about my hearing. Can anyone tell me what to expect? Im not sure what this means, i talked to my lawyer and i dont need to do anything. I had posted this the other day but not thinking i didnt post as a question so sorry for the repeat!
I went on disability when I was pregnant. My work got me assigned after having the payments for pregnancy. They got in touch with all my physicians. I have partial complex sz w/ generalized seizures… read more
I have twitching that goes on for hours. Instense deja vu for even longer afterward. I had epilepsy surgery 3 years ago and these new episodes started a year ago. Has anybody had similar experiences after surgery?
Whats anyone or everyones experiences with SSDI backpay? Ive struggled years to get a favorable decision and am so so thankful! But now seems like they're putting me off, keep telling me they're sending messages to the payment center when i call them. Its not leading anywhere. I called my lawyer and spoke to the paralegal she advised mento wait another 2 weeks and call them back. Thank you all!
We didn’t when my husband got his, but that was back in 2017
My doctor is wanting me to complete step two the seeg to see if they can figure out were my seizures are coming from as they don't understand why have been still having seizures after having brain surgery when I was 14 were they removed my right temporal lobe and as I've had a VNS. Their trying to see if I can qualify for the RNS.Part of me just wants to change my VNS battery
I keep trying and trying help the Lord's help I will get there. 🙏🏻
I struggle with my mental health and my seizure activity doesn't show up on EEG. I have full tonic clonic seizures, I lose consciousness and seize for about 2 minutes typically. I dissociate first, You could ask me my name and I would not be able to answer. Its short bursts of dissociation almost, where I can be talking and then lose what I'm saying and the thought just shuts off entirely and then I will regain awareness after a bit, usually have multiple short dissociative episodes, sometimes… read more
@A MyEpilepsyTeam Member Thats pretty much how i feel, just disconnected from my body, unable to speak or process whats happening. I can't respond to anything or sometimes will get an unconscious… read more
For those of you that have, how did you go about getting permission from your Dr to have a pet in your home if needed if you're renting?
I don't have an emotional support dog & my seizures ,like Maureens,aren't manageable.
Just found out after many denials and appeals i finally have my SSDI hearing coming up in November. I do have a disability lawyer so im relieved there, but i was wondering if anyone could guide me some on what they've experienced. Mine will be online of course with corona. Im trying to stay low stress about it and sort of prepare also. Thanks everyone!
Just moved to Ohio because uc health top Tennessee got my disability 👋
I have found Stevie to be a nice replacement.
Youre supposed to be prepped when going to the dr but what if you are always and have been (exhausted, anxious, seizures, depressed, diet problems, medication side effects, pick anything) so its your norm and dont realize its something to address? What tricks are there to tell them everything not leaving anything out.
Doing my best to stay as "Healthy as Possiblle"
Also eating things that won't bring on any pain to my joints
Try to have only two slices of bread a day, I eat eggs & protein.
Suffer… read more