Have any of you taken Tegretol/Carbatrol long term and later developed lupus or auto immune issues?

Hello, Friends.

I have tried the combination Briviat with Carbatrol before, along with Lyrica and Topamax. Once I start with Briviact, I will so much better than I don't even consider it a seizure, than after a week or so, I start to experience more seizures than usual.

Currently, I am taking Carbatrol + Fycompa + Lyrica. I have been thinking to re-take Briviact again. I know there is an interaction between Briviact and Tegretol, but I'm wondering if anyone has tried/ trying this combination… read more

Hi everyone. I am Robbie, going to be 57 on August 1 and have had seizures since 11 years old. I take Carbatrol, Keppra and Lamictal for my seizures and also have had VNS since the early 90's. I have never been able to get my seizures fully controlled. The last couple of years they are getting steadily worse...have tried 3 new meds over the course of last year..had reactions to all if them and couldn't take. I'm thinking seriously about having the surgery done to remove scar from my brain they… read more

My pancreas stopped working. I take Vimpat Phenobarbital Felbamate and Diamox.

I use, successfully, two narrow spectrum drugs after brain surgery in Jan 2016. Lacosamide (Vimpat) & Dilantin have helped get 7 yrs 3 months seizure free. But Dilantin was invented in 1908. Is there a newer replacement for it?

Anyone have any experience switching off carbatrol to lamictal? Did you have seizures? They want me off 200 mg a week. Off in 4 weeks and building up on lamictal now before cutting carbatrol.

Anyone have any experience switching off carbatrol to lamictal? Did you have seizures? They want me off 200 mg a week. Off in 4 weeks and building up on lamictal now before cutting carbatrol.