Connect with others who understand.

sign up log in
About MyEpilepsyTeam
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Carbatrol"

reset

Carbatrol

Carbatrol

A MyEpilepsyTeam Member said:

What do you want to about it

posted over 2 years ago

Carbamazepine

Carbamazepine

Anyone have any experience switching off carbatrol to lamictal? Did you have seizures? They want me off 200 mg a week. Off in 4 weeks and building up on lamictal now before cutting carbatrol.

A MyEpilepsyTeam Member said:

I have been on it for almost 14 years and all my bloodwork has been fine. I haven't had a grand mal seizure since I started taking it.

edited, originally posted over 1 year ago

Carbamazepine

Carbamazepine

Anyone have any experience switching off carbatrol to lamictal? Did you have seizures? They want me off 200 mg a week. Off in 4 weeks and building up on lamictal now before cutting carbatrol.

A MyEpilepsyTeam Member said:

No worries. Had No heart issues, just that my seizures were uncontrolled that they switched.

posted over 2 years ago

Tegretol/ Carbetrol User

Tegretol/ Carbetrol User

Hey guys,

I don't want to waste your time, so I will cut to the point. I'm taking 1200mg and the blood level 12. I take 600Mg AM and 700Mg PM, so thing what happens, during the day I have no seizure at all, but once I take the medication at night, I will have seizure during sleep (Only), I don't know why. The only difference is that I'm taking 400mg Carbetrol at night that's the only time I take Carbetrol.

Has any one has a problem like that?

Note: other medication I'm taking… read more

A MyEpilepsyTeam Member said:

OH MY!!!!!!! The neurologist tried to change my medications to toperimate and IT DID NOT GO WELL!!!!!!! I lasted 2 days and ended up with cellulitis and… read more

posted 9 months ago

Carbatrol

Carbatrol

I've been put up to 1200 mg per day of tegretol retard. This is the maximum dose and seems very high - has anyone else been on such a high dose and did you suffer any side effects?

A MyEpilepsyTeam Member said:

Talk to your neurologist about tegretol. It is suppose to due damage to your liver. My Neuro. Wanted to take me off but didn’t yet.

posted 5 months ago

Fycompa Side Effects

Fycompa Side Effects

Is anyone else on Fycompa and dealing with negative side effects? I was placed on it in addition to Keppra, Carbatrol and Zonisamide and I have not been myself. Both my husband and I truly don't know if the Zonisamide has had any positive effects. My seizure activity has increased in the last 6 months and a Neurologist I see since moving to Florida from Chicago prescribed them. My husband has not been happy with the Neurologist.
LOL,
Bonny

A MyEpilepsyTeam Member said:

Frustrated with your doctor you never one thing unless you only have one doctor in that whole area then you may be stuck but still go to Google ants… read more

posted over 3 years ago

Anyone Have Advice On Petite Mal Seizures?

Anyone Have Advice On Petite Mal Seizures?

My carbatrol prevents my grand mal seizures but not my cluster seizures that are contained to my right leg only. My whole right leg will tense up, jerk and shake. Sometimes it will continuously tingle and my toes will jump. When it does that, if I try to walk I'll have my "leg" seizures. They seen to be Random with no known (to me) cause. Anyone have advice in who to look for for help with these seizures? Or does anyone have any similar?

A MyEpilepsyTeam Member said:

You may want to find an Epileptologist ( if possible) and get some advice from them.

posted over 4 years ago

Fycompa User

Fycompa User

Hey guys,

I have a strange case here, I'm been "FYCOMPA" for over two weeks,but the strange thing that I will start to have seizure once I'm on 4mg. However, 2mg everything is fine, In reality if the medication is working shouldn't give a side-effect, but help out more. Am i right?

Did/Has any one have a situation like that and do you know why?

Note: I'm taking Tegretol + carbetrol and know these medication decrease the efficiency of the Fycompa.

Thank you!

A MyEpilepsyTeam Member said:

Odd. Ive been fine on 4mg. It just makes me more dizzy sometimes

posted about 1 year ago

Carbatrol

Carbatrol

I take Dilantin and Phenobarbitol, in the last year I have been having Seizure activity, I had on breakthrough seizure in my sleep as far. They tried adding Keppra to the other two but I was turned into a zombie so they weaned me off of the Keppra and put me on Tegretol. I am now up to taking 250 mg a day and have all of the side effects , especially the blurred vision and confusion, I literally made reservations to stay in a hotel in the wrong city! Fifty-three miles West of where we were meant to go!… read more

A MyEpilepsyTeam Member said:

I have taken phenobarbitone since 14 and they are the best for me, was on Epanutin also. Before that Valium.
Epanutin isn't a kind drug. Been on Keppraread more

posted about 4 years ago

Twitching And Jerking

Twitching And Jerking

So I have had 2 episodes of twitching and jerking. My diagnosis is nocturnal tonic clonic but for the twitching and jerking I am aware and am able to respond though it seems like way too much work to talk. The first episode of t & j was after a tonic clonic. I was t-ing and j-ing so much that my husband felt he needed to hold me tight. Not the right response at all and certainly not comfortable. Last night I had another round of t-ing and j-ing. Lasts for several minutes I think. Always… read more

A MyEpilepsyTeam Member said:

I am so sorry that I have no words of advice or comfort regarding switching meds. When my neuros have suggested a switch it send me into a panic and I… read more

posted over 2 years ago