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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Carbamazepine And Lupus

Carbamazepine And Lupus

Have any of you taken Tegretol/Carbatrol long term and later developed lupus or auto immune issues?

posted 2 months ago
A MyEpilepsyTeam Member said:

I know what you mean. Saw a new Dr last week. He's an Epileptologist so hoping he can help with some of problems I've had recently. He's weening me off the Carbatrol XR over the next two months. Says the Lamictal I'm taking is lowering effect of the Carbatrol. He's wanting to try Vimpat in place of it. I've heard of ut but never tried that one before. Also sent me to to a neurosurgeon to have mt VNS replaced. Not sure I'm going to. It really hasn't helped enough either.

posted about 2 months ago
A MyEpilepsyTeam Member said:

I Appreciate you responding. So many side effects. Smh its sad

posted 2 months ago
A MyEpilepsyTeam Member said:

Alex3....it mainly mentions this happening with women...I've been on Tegretol and Carbatrol XR for years. Articles I've read says 80 % of women who are on carbamizapin 10 years are more can go on to develop lupus type symptoms. I believe that's what caused mine.

posted 2 months ago
A MyEpilepsyTeam Member said:

Im on Tegretol now i hope that cant happen!

posted 2 months ago
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