I've just explored the site a little more. I came across the epilepsy association medication list and found diazepam rectal gel listed but no intranasal midazolam?? I realise the majority of people here aren't Australians, so perhaps it's something not used often overseas.
I still occasionally have a very large grand mal that requires medication to bring me around, but I was put onto using intranasal midazolam years ago.
Prior to the midazolam all my partner could use during a large grand mal was the… read more
Since I've moved to Australia I've been taking generic keppra and lamictal. I took the same medicine in the USA, but I'm feeling some intense side effects from the generic medicine here. My friend that's a pharmacist said it could be from fillers that are used in the medicine. I'd pay for the name brand but it's very expensive. And then the stress from the financial strain can cause a seizure. Anyway, could there be something in the medicine that… read more
I've had JME epilepsy for 20 years. I was always on Epilim which kept me pretty well seizure free. A while back, my fiancé and I decided that we would change meds as recommended by my neurologist so that we can have a baby.
I am also now 19 weeks pregnant. Reaching the half… read more
I have found lately that after a seizure I am so much more sensitive to criticism and to well basically anything emotionally draining.
Am I the only one?
I'm hoping this is normal!
I've got complex partial seizures with identified abnormality in my temporal lobe. Seizures are focal so my neurologist said surgery is an option I should consider, but I'm pretty scared and not sure it is worth it. My seizures aren't very bad and I could still lead a mostly-normal life but I plan to become a doctor and with sleep deprivation being a major trigger for me it may prevent me… read more
I am taking 800mg aptiom and I am supposed to take 1000mg aptiom. A long with aptiom I am taking keppra 500mg morning and night and I also take vimpat 200mgprning and night. I am having vision problems. I have had vision problems for days to 2 weeks now. Its like I can see but barely. Is this the aptiom, or what could it be?
When you were first diagnosed with epilepsy what research did you do? Treatments, alternative treatments?
I want an app for my iPhone that covers epilepsy from diagnoses, types of seizure, treatments etc.
Any recommendations? For iPhones, books or e-books. Thanks in advance
How does anyone who is a full time parent get by with epilepsy and the fear of having one by yourself with just your child. I have grand mal and partial seizures. I'm to scared to have another child because I'm scared I shouldn't be a mother because of my epilepsy. I've recently also had brain surgery. So I have had a lot of help since my son was born. It's hard to feel like a… read more
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?