Aptiom and epilepsy | MyEpilepsyTeam

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A MyEpilepsyTeam Member asked a question 💭

Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.

A MyEpilepsyTeam Member

I Was on Topomax and it had some side effects that were tolerable … Stay strong in time you might be thankful 🙏 🙏

Does Anyone Know What, If Any, Fillers Are Used In Generic Medicines?
A MyEpilepsyTeam Member asked a question 💭

Since I've moved to Australia I've been taking generic keppra and lamictal. I took the same medicine in the USA, but I'm feeling some intense side effects from the generic medicine here. My friend that's a pharmacist said it could be from fillers that are used in the medicine. I'd pay for the name brand but it's very expensive. And then the stress from the financial strain can cause a seizure. Anyway, could there be something in the medicine that I'm not aware of?

A MyEpilepsyTeam Member

All of my meds are in generic my insurance will not paid for brand name

A MyEpilepsyTeam Member asked a question 💭

I have found lately that after a seizure I am so much more sensitive to criticism and to well basically anything emotionally draining.
Am I the only one?
I'm hoping this is normal!

A MyEpilepsyTeam Member

I feel you

Being A Mother With Epilepsy With A Two Year Old.. How Do Parent With Epilepsy And Feel Confident Of Being By Yourself With Your Child.
A MyEpilepsyTeam Member asked a question 💭

How does anyone who is a full time parent get by with epilepsy and the fear of having one by yourself with just your child. I have grand mal and partial seizures. I'm to scared to have another child because I'm scared I shouldn't be a mother because of my epilepsy. I've recently also had brain surgery. So I have had a lot of help since my son was born. It's hard to feel like a mother
Is anyone else in this position or know how it feels? My parents help us but they are now in their 70's. They… read more

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I wasn't worried about my Pregnancy or my Son having the same Condition that I have b/c at the time my Doctor was in the Houston Medical Center which has some of the best… read more

Seizure Diary
A MyEpilepsyTeam Member asked a question 💭

Can anyone suggest a good seizure diary app compatible for iphone? Thanks

A MyEpilepsyTeam Member

What I do is I put notes on my phone. This way I can find my notes and write them down when I see my doctor. My doctor can keep my notes in my file and have a record of what is going on in my head.

Understanding Neurology
A MyEpilepsyTeam Member asked a question 💭

When you were first diagnosed with epilepsy what research did you do? Treatments, alternative treatments?

I want an app for my iPhone that covers epilepsy from diagnoses, types of seizure, treatments etc.

Any recommendations? For iPhones, books or e-books. Thanks in advance ✌🏻

A MyEpilepsyTeam Member

Must be your own advocate and do your own research as even the specialist cant understand what your going through. Tests don't always match your symptoms either, doesn't hurt to get a second opinion… read more

Keppra And Frisium During Pregnancy
A MyEpilepsyTeam Member asked a question 💭

Hi Everyone,

I've had JME epilepsy for 20 years. I was always on Epilim which kept me pretty well seizure free. A while back, my fiancé and I decided that we would change meds as recommended by my neurologist so that we can have a baby.

It wasn't as easy as first expected and I had a couple of seizures, trying to transfer over to Keppra. My neuro added Frisium which seems to have worked and I'm now over a year seizure free.

I am also now 19 weeks pregnant. Reaching the half way mark, I am… read more

A MyEpilepsyTeam Member

so happy for you on your blessing!!! it gives me hope for me that one day i can have a family too!!! keppra didnt work for my type of seizure i hope that it continues to work for you!! please keep us… read more

A MyEpilepsyTeam Member asked a question 💭

I've just explored the site a little more. I came across the epilepsy association medication list and found diazepam rectal gel listed but no intranasal midazolam?? I realise the majority of people here aren't Australians, so perhaps it's something not used often overseas
I still occasionally have a very large grand mal that requires medication to bring me around, but I was put onto using intranasal midazolam years ago
Prior to the midazolam all my partner could use during a large grand mal… read more

A MyEpilepsyTeam Member

Still foggy. I was given 2 doses up the nose. It worked. No hospital this time. It has worked for me 3 times now. Hangover sucks

Best Epilepsy Medications/Most Common/Most Effective
A MyEpilepsyTeam Member asked a question 💭

Do you know the most popular/common/effective Epilepsy Medications? Based on your personal experience, which ones have worked for you?

A MyEpilepsyTeam Member

My meds are ok, but my faith in my life and my routine of prayer and bible study are the best for me, I am not perfect and do sin, but is my answer here

When Dating Someone New How Soon Should I Inform Them Of My Epilepsy?
A MyEpilepsyTeam Member asked a question 💭

I am back on the dating scene and am curious when should I tell the guy I am dating about my Epilepsy? and how do I approach the topic?

I have not been dating for awhile due to other health issues but now feel ready to start dating again. I am also vision impaired and where that is quite obvious and explains away the reason I do not drive I feel a bit unsure of when and how to approach about my Epilepsy. Is it something I should mention to them right away?. I don't want to scare the guy… read more

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member not sure who you are speaking to when you ask why post a link everyone can't get to. I dont see any link in anyone's comments.