I've just explored the site a little more. I came across the epilepsy association medication list and found diazepam rectal gel listed but no intranasal midazolam?? I realise the majority of people here aren't Australians, so perhaps it's something not used often overseas.
I still occasionally have a very large grand mal that requires medication to bring me around, but I was put onto using intranasal midazolam years ago.
Prior to the midazolam all my partner could use during a large grand mal was the… read more
Without dragging myself from the bed I think the midazolam is 5mgs in 1ml. Isn't it difficult getting a dropper in your mouth when your seizing?
Thanks :) Your input really means a lot.
@A MyEpilepsyTeam Member, mine is also 5mgs per mL.
And I completely could not tell you. I am completely and utterly not here when I've had to use it. Someone has always given it to me. But no, I could not imagine giving it to myself.
If it was an option for me Hun I'd be seriously thinking about it also.
My doctor just talked to me about thinking about the VNS. If I were to get that, for my simple partial seizures, I would be able to use the magnet that comes with it, to try stopping the seizure or lessening the severity of it. I'm really thinking about it.