When you were first diagnosed with epilepsy what research did you do? Treatments, alternative treatments?
I want an app for my iPhone that covers epilepsy from diagnoses, types of seizure, treatments etc.
Any recommendations? For iPhones, books or e-books. Thanks in advance
I just look on the Epilepsy Society's site if I need to know something, think in U.S its the Epilepsy Foundation but if you do find an app would be good.
Hope our day goes well xx
I constantly take a book with me when I leave home to go somewhere. As my memory is really bad. With a lot of things in there from my home address to my daily medication.
@A MyEpilepsyTeam Member
I agree. I walk around looking like I'm drunk because of these meds anyway, not to mention I become aphasic at ANY given time! I have " focal seizures" written on my Medic Alert bracelet and all EMT's need to do if I can't speak is call the Medic Alert company and they will tell them I can't speak and it's not necessary to take me to the ER. Honestly, I'm never without either family or close friends anyway because I can't drive...and they all know my problems.
I have an emergency next of kin card, SOS card. Its £12 a year and they send a key ring, 2 cards ( size of credit card ) and a chain with a disc on. On the key ring etc is police, ambulance ect and your membership number, if anything happens all someone has to do is ring the number, give them the membership number and the person you speak to has all your details immediately to give to paramedic, police whatever. The info includes all medical problems, all meds, Gp, Consultants name and hospital where you see them and your next of kin and 2 other contacts. I will post picture of them tomorrow its defiantly worth the £12, I had a seizure a couple of years ago on a train going to my daughters and they used it then. X