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Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.
I hope you have a blessed Christmas holiday also @A MyEpilepsyTeam Member
I had an appointment this morning any my neurologist told me about Cefaly. I have terrible migraines and its a non medication treatment- both to prevent and rescue. Im doing a little bit of research of my own along with all the information he gave me.
No. How does it work?
To be truthful none as when I looked up to having one of them they cost thousands and thousands of pounds to have and you don’t get to pick the dog they choose it for you and that’s even if you have… read more
I received a letter from SSDI that the judge is 'fully favorable' about my hearing. Can anyone tell me what to expect? Im not sure what this means, i talked to my lawyer and i dont need to do anything. I had posted this the other day but not thinking i didnt post as a question so sorry for the repeat!
I went on disability when I was pregnant. My work got me assigned after having the payments for pregnancy. They got in touch with all my physicians. I have partial complex sz w/ generalized seizures… read more
For me it's taking 9 weeks...after several emergency hospitalizations I was recently diagnosed with Epilepsy. There was a neurologist that came to see me in the hospital and started me on Remeron… read more
Ive been experiencing rls for around a week now around 5 minutes after i go to bed for the night. Nothing i can think of has changed in my routine, diet, or meds. Anyone else experience this?
@A MyEpilepsyTeam Member The other stretch I couldn't remember - stand straight with your feet together and cross one foot over the other. Bend at the waist and try to touch your toes keeping your… read more
Since I've moved to Australia I've been taking generic keppra and lamictal. I took the same medicine in the USA, but I'm feeling some intense side effects from the generic medicine here. My friend that's a pharmacist said it could be from fillers that are used in the medicine. I'd pay for the name brand but it's very expensive. And then the stress from the financial strain can cause a seizure. Anyway, could there be something in the medicine that I'm not aware of?
All of my meds are in generic my insurance will not paid for brand name
For those who have had brain surgery, specifically a craniotomy, what mental side effects did you have after the surgery? Do you feel if it affected your mood, causing or contributing to depression, anxiety or paranoia? Please share your experiences with this. Thank you!
Thank you so much for your thoughts, I really appreciate it! Sending you prayers on your journey of recovery!
I have found lately that after a seizure I am so much more sensitive to criticism and to well basically anything emotionally draining.
Am I the only one?
I'm hoping this is normal!
I feel you
My neurologist had me start hydroxyzine awhile ago for insomnia. It didn't touch me so he upped the dose. Still didn't do anything. So I told him I wanted off of it. He wasn't concerned with the… read more