juvenile myoclonic epilepsy symptoms causes and treatment and epilepsy | MyEpilepsyTeam

Connect with others who understand.

sign up Log in
Resources
About MyEpilepsyTeam
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "juvenile myoclonic epilepsy symptoms causes and treatment"

reset
Myoclonics At Night Or During Nap Time.
A MyEpilepsyTeam Member asked a question đź’­

Why do I keep on having myoclonics sometimes when I'm asleep or just taking a nap? I just want it all to go away.

•
View reactions
A MyEpilepsyTeam Member

I’ve noticed myoclonics in non epileptics when they fall asleep also.

Does Anyone Ever Experience The Odd Twitch Now And Then
A MyEpilepsyTeam Member asked a question đź’­

i get the odd twitch in my arms and legs and i dont know why it just comes out of the blue is it a sign a seizure is coming my medication has recently put to the highest dosage possible could that be why?

•
View reactions
A MyEpilepsyTeam Member

All the time, both myoclonic seizures and just twitching muscles.

Vagus Nerve Stimulation
A MyEpilepsyTeam Member asked a question đź’­

I have Juvenile Myoclonic Epilepsy and was wondering if VNS is an option? If so has this helped you?

A MyEpilepsyTeam Member

Hi @A MyEpilepsyTeam Member , Welcome to the site! Our team member @A MyEpilepsyTeam Member , use to have a VNS but it wasn’t helping him & so it was removed & he got the RNS & that has helped to… read more

Sponsored Content
Learn more about Vagus Nerve Stimulation Therapy Read more >
Spices
A MyEpilepsyTeam Member asked a question đź’­

Sorry another foody question. Are certain spices good or bad for you? I enjoy Indian and Chinese food but don't want to over do it.

•
View reactions
A MyEpilepsyTeam Member

I think that is on the individual, I am on a norm diet, I don't know if any food that is a prob, if a seizure does come about which I don't wish ,but if does I'm not going to stop my daily lifestyle… read more

Treatment Ideas For Juvenile Myclonic Epilepsy?
A MyEpilepsyTeam Member asked a question đź’­

My son was diagnosed with juvenile myclonic epilepsy. He takes Keppra and has had several morning grand mal seizures in the last year. Any stress in the morning causes a seizure even on 2000 mg Keppra. We try to manage his stress and sleep as best as possible. He cannot drive until 6 month seizure free, being 18 yrs old that is very frustrating for him.
How do you manage your lifestyle, medications, diet, etc.

A MyEpilepsyTeam Member

Also look into Haleigh's Hope CBD. I've heard good things about this one.. It's made a little different but has a little more THC.. Charlottes Web is .03 THC

How Does Pregnancy Make Your Seizures Worse?
A MyEpilepsyTeam Member asked a question đź’­

Like I get everything metabolizes quicker with pregnancy especially medications but I've been having some breakthrough seizures on my medications I take 2,000 mg a day and having breakthrough seizures with pregnancy

A MyEpilepsyTeam Member

I am on my second and having breakthrough seizures mine are refactory seizures and genetic

Only Women Will Understand!!
A MyEpilepsyTeam Member asked a question đź’­

Does anyone else’s seizures get really bad when their “time of the month” is about to come and is still going on??

•
View reactions
A MyEpilepsyTeam Member

Terribly and the mood swings I honestly thought I had pmdd apparently because epilepsy we are more in tune with changes.

Does Anyone Else Have JME And How Often Are Your Seizures? Feels Like I Have A 2/3 Month Timeframe And Then I Have One.
A MyEpilepsyTeam Member asked a question đź’­
A MyEpilepsyTeam Member

JamSimm,
Thanks for the hug.

Has Anyone In South Africa Lost Their Job And Been Medically Boarded Due To Their Epilepsy?
A MyEpilepsyTeam Member asked a question đź’­

I have always worked, now at the age of 47 years old, my epilepsy is totally out of control, and I have had to disclose this to my company (never done this with any company). I'm naturally extremely concerned about finances and the outcome. My company is talking permant incapacity or to be medically boarded.

A MyEpilepsyTeam Member

I couldn't agree with you more, I have Juvenile Myoclonic Epilepsy and have 70 seizures in the last 3 weeks and they doing the same to me. I also can't drive now for 1 year, I still can't over the… read more

Has Anyone Tried The Medication Xcopri? Has It Helped?
A MyEpilepsyTeam Member asked a question đź’­
•
View reactions
A MyEpilepsyTeam Member

No, I’m just up to 150mg of Xcopri. The decision on going up will depend on how I do on 150mg for 3 months. I have generalized tonic-clonic epilepsy and a few years ago after my last VEEG was also… read more