Why do I keep on having myoclonics sometimes when I'm asleep or just taking a nap? I just want it all to go away.
I’ve noticed myoclonics in non epileptics when they fall asleep also.
i get the odd twitch in my arms and legs and i dont know why it just comes out of the blue is it a sign a seizure is coming my medication has recently put to the highest dosage possible could that be why?
All the time, both myoclonic seizures and just twitching muscles.
I have Juvenile Myoclonic Epilepsy and was wondering if VNS is an option? If so has this helped you?
Sorry another foody question. Are certain spices good or bad for you? I enjoy Indian and Chinese food but don't want to over do it.
I think that is on the individual, I am on a norm diet, I don't know if any food that is a prob, if a seizure does come about which I don't wish ,but if does I'm not going to stop my daily lifestyle… read more
My son was diagnosed with juvenile myclonic epilepsy. He takes Keppra and has had several morning grand mal seizures in the last year. Any stress in the morning causes a seizure even on 2000 mg Keppra. We try to manage his stress and sleep as best as possible. He cannot drive until 6 month seizure free, being 18 yrs old that is very frustrating for him.
How do you manage your lifestyle, medications, diet, etc.
Also look into Haleigh's Hope CBD. I've heard good things about this one.. It's made a little different but has a little more THC.. Charlottes Web is .03 THC
Like I get everything metabolizes quicker with pregnancy especially medications but I've been having some breakthrough seizures on my medications I take 2,000 mg a day and having breakthrough seizures with pregnancy
I am on my second and having breakthrough seizures mine are refactory seizures and genetic
Does anyone else’s seizures get really bad when their “time of the month” is about to come and is still going on??
Terribly and the mood swings I honestly thought I had pmdd apparently because epilepsy we are more in tune with changes.
JamSimm,
Thanks for the hug.
I have always worked, now at the age of 47 years old, my epilepsy is totally out of control, and I have had to disclose this to my company (never done this with any company). I'm naturally extremely concerned about finances and the outcome. My company is talking permant incapacity or to be medically boarded.
I couldn't agree with you more, I have Juvenile Myoclonic Epilepsy and have 70 seizures in the last 3 weeks and they doing the same to me. I also can't drive now for 1 year, I still can't over the… read more