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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Else Have JME And How Often Are Your Seizures? Feels Like I Have A 2/3 Month Timeframe And Then I Have One.

A MyEpilepsyTeam Member asked a question πŸ’­
February 4, 2023
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A MyEpilepsyTeam Member

Thank you, JamSimm. JME was a new term to me.

February 5, 2023
A MyEpilepsyTeam Member

I also have JME, my seizures use to be bad as a teenager but, seemed to change as I got older which I guess now are not considered focal to my new doctor. Though they come across that way.🀷 Last Friday, I seen an epileptologist (who said I do indeed have JME despite only having 1 grand-mal or Tonic-Clonic in my life) but, did have myoclonic seizures and weird space outs among other things and told they were focal seizures and aura's. Though for the past few years now, I have been seizure free. Thank God! Honestly, I never thought it would ever happen. To kind of answer your question, I think it depends on the person and their situation especially if they are triggered. Which could cause seizures to happen even more. Example Photosensitivity is hard to avoid at times, sometimes its adolescence, or even a medication you are on. There are certain medications used for JME. Im the past I tried 9 different drugs, the one that has worked the best is Lamotrigene. Strangely, it is used for JME and a variety of others. So maybe this explains it? I also, just learned recently that JME is on spectrum. So, I guess anything is possible.

September 21 (edited)
A MyEpilepsyTeam Member

JamSimm,
Thanks for the hug.

February 6, 2023
A MyEpilepsyTeam Member

My daughter has JME. She was diagnosed 2 years ago. She hasn't had a seizure since March of 2021. She still has some Myoclonic jerks we are trying to get rid of. But no Tonic seizures at all.

February 4, 2023
A MyEpilepsyTeam Member

Juvenile Myoclonic Epilepsy

February 4, 2023

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