I also have "trigeminal neurolgia" from being buried in the snowy blizzard in boston 1978 & saved by the national guards.Thank you!! I was on dilantin for years and the ER doctor said my epilepsy meds were also controlling my "trigeminal neurolgia" facial nerve pain.. Because years later when they took me off of dilantin is when I experience the pains. I can't let the slightest wind blow on the right side of my face or I will be bedridden for a week of pain. My question is there another seizure… read more
Have you asked for a PRISM blood test? Brain on Fire was an excellent movie on misdiagnosis and this PRISM blood test can be done as routine with CBS panel which shows exactly which nerves in the brain are affected.
I am sorry you are the first person I have heard suffer from trigeminal neurolgia.
However I was on dilantin for over 27 years. The side affect that I occurred was the slowing down of my brain and the extra sleep.
The trigeminal nerve is cranial nerve number 5 ( there are 12 pairs) I understand Tegretol can be beneficial for this as well as some seizures
List of Anti-Convulsants for use are below. But can be found in link below.
To treat trigeminal neuralgia, your doctor usually will prescribe medications to lessen or block the pain signals sent to your brain.
Anticonvulsants. Doctors usually prescribe carbamazepine (Tegretol, Carbatrol, others) for trigeminal neuralgia, and it's been shown to be effective in treating the condition. Other anticonvulsant drugs that may be used to treat trigeminal neuralgia include oxcarbazepine (Trileptal, Oxtellar XR), lamotrigine (Lamictal), valproate and phenytoin (Dilantin, Phenytek, Cerebyx). Other drugs, including clonazepam (Klonopin), topiramate (Qsymia, Topamax, others), pregabalin (Lyrica) and gabapentin (Neurontin, Gralise, Horizant), also may be used.
If the anticonvulsant you're using begins to lose effectiveness, your doctor may increase the dose or switch to another type. Side effects of anticonvulsants may include dizziness, confusion, drowsiness and nausea. Also, carbamazepine can trigger a serious drug reaction in some people, mainly those of Asian descent, so genetic testing may be recommended before you start carbamazepine.
ty. ER doctor said since my pain is only when wind hits the facial nerve and I have stage 1-2 not the worse trigeminal neuroglia pains.
He told me that I should just take acetominpheren as he prescribed. As surgery if it was worse and it is not..thank the good Lord. He said the surgery can cause drooping on the face. Epilepsy is enough to deal with. I am praying that this vimpat will also control the trigeminal pains if starts up so I wear hats constantly when outdoors even in hot where!
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