My Neurologist Introduced Me To Something The Other Day..VNS Therapy. Are Any Of You Familiar With It? Or Have It? | MyEpilepsyTeam

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My Neurologist Introduced Me To Something The Other Day..VNS Therapy. Are Any Of You Familiar With It? Or Have It?
A MyEpilepsyTeam Member asked a question 💭
posted March 14
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I once had a Vagus Nerve Stimulator (VNS). It would turn on every 4 or 5 minutes and was supposed to keep seizures from occurring. When I had a seizure someone would touch it with a magnet and that was supposed to wake me back up. I hated how when it turned on it vibrated like crazy. It would make me cough and mess up my speech. We never saw any improvements in my seizures so I chose to have another surgery and get it removed. It’s probably worked better for others though.

posted March 14
A MyEpilepsyTeam Member

It’s a simple procedure and you can go home the same day. As usual everyone is different but I have had mine for two years now with no luck. I’m working towards surgery now. The VNS is kinda like a add on treatment and will still need to take your meds

posted March 15
A MyEpilepsyTeam Member

In 2005ci had the VNS. It was upsetting for me. My seizures never changed.. by 2010 the power box started to die. My Dr. Agreed with me ,that it wasn’t worth replacing the device..

Now keep in mind , just because it didn’t work well for me , doesn’t mean it won’t work for you.

posted March 15
A MyEpilepsyTeam Member

A simple procedure for implant of wires to the vagus nerve leading to brain to interrupt the seizure with magnet. Had one bout 6 years ago, no luck so easily removed. Computer guided minor surgery, has helped others so if Dr. recommends try it for self to see results. Listen only to Dr bout details for best info to ease mind best.

posted March 14
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