I sometimes see requests for donations in e-mails from my local Epilepsy Foundation & on their Facebook page. During the Summer they request certain things or even monetary donations for kids who will be attending their Epilepsy camp & they offer a list of items they need & how many more they still need. They request the monetary donations to help send a child to camp. I’ve purchased a few things a couple years in a row to help give back & help them being that my local Epilepsy Foundation helped me when I didn’t have any insurance. I often see a commercial on TV for one company requesting donations but I then think ya, what about me,, who’s gonna help me? I know that sounds selfish & I don’t mean for it to, but every time I turn around I’m seeing this commercial, well, we need help to & there’s so many people out there who aren’t familiar with their local Epilepsy Foundation & that they can turn to them for help with assistance in getting their medicine, seeing a Neurologist, possibly even housing & other such assistance things & support groups & other events they offer. I don’t think I knew right away about them & then in 2019 I called my local Epilepsy Foundation & asked for help & have been connected with them since. When connecting with new team members, when I introduce myself, I try to first look up to see where their local Epilepsy Foundation is & then pass that information & website link onto them. Who knows why there’s not more advertising for the Epilepsy Foundation. It costs money to probably get those commercials on TV. Maybe more than what the Epilepsy Foundation can afford compared to these other organizations we see on TV asking for donations. Your friend in Texas, Becky

I’ve always wondered that to. The only time I have seen any donations from the Epilepsy Foundation , is by mail info from Epilepsy Foundation , Epilepsy / disability conference and events and and different Epilepsy websites.

Never once have I’ve seen advertisements during Epilepsy awareness month . But once in a great while I would see a tv show , usually on Doctor drama shows . The ones I’ve seen did horrible jobs trying to show someone having a seizure.

That's great the way you were treated, as I have been on all of my occasions. I have no complaints, just letting others on this site to be careful when someone asks for your social security number........anywhere!!

@A MyEpilepsyTeam Member , When I was in college, I was in the library studying & apparently I had a seizure & a girl witnessed it & went & got help. When I came out of it I still there where I had sat down to study but I woke up with 2 EMS guys & a campus Police Officer behind me & I asked what happened & they told me that I had a seizure & they asked if there was someone I could call to come & get me & I told them my Mom & luckily she worked just a few blocks away. They asked if I wanted to go to the hospital & I said no & they asked again a little later to double check & I said no. So luckily my experience with them has been positive & they were familiar with Epilepsy. Your friend in Texas, Becky

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A MyEpile...

@A MyEpilepsyTeam Member
I agree. Epilepsy needs to be shown more. People have dialed 911 on me having a seizure multiple times. If people were more familiar with epilepsy they wouldn’t have been so scared.

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