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Adam "Ad-Rock" Horovitz, member of the hip-hop group the Beastie Boys, experienced a tonic-clonic seizure in 2003. When Ad-Rock announced he had begun to wear a medical alert bracelet due to epilepsy, a wave of empathy and validation washed over the epilepsy community. “Wow. Even him, too?”
Three things happen for us when a celebrity opens up about a diagnosis and shares the fact of their chronic illness with us.
First, they help to destigmatize the disease. The condition becomes more visible and relatable. Suddenly, we see our friends and family changing their attitudes toward our condition, and even toward us.
Second, we feel more hopeful and inspired in our own life. Knowing that a celebrity is facing the same day-to-day struggles we do, all while under the glare of stardom, we are more endeared toward them. We especially feel a connection when they use their voice to bring visibility to epilepsy.
Finally, we feel empowered by the will of celebrities to step forward and take control of the narrative about their condition under intense media scrutiny. When they show the world what it means to live with epilepsy, they offer a roadmap and inspire confidence for how we might do the same.
Whether famous or not, the public acknowledgment of one’s disease is a brave act in the face of the stigma of chronic conditions. As epilepsy awareness spreads, acceptance soon follows.
Is there a notable person who has inspired you? How do you feel about celebrities discussing their condition? Share in the comments below or post on MyEpilepsyTeam.