Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.

CBD to combat generalized Grand Mal seizures triggered by screens/video games? We've heard of a few and would like to know the brands and doses you have used. Did your neuro guide you or did you have to venture out on your own?

I’m coming to the point where I feel i have tried many things that have not helped (Im no longer medicated) I want to try weed, sadly in Australia it’s illegal but that doesn’t bother me,
Does anyone have any advice or knowledge when it comes to this !?

I've been taking 600mg Zonisamide and 6mg Fycompa for a few years and still having seizure from time to time. A month ago I added .5 CBD oil in the am and pm. It had been 6 weeks ALL GOOD but then I had another seizure!!! Does that mean the medical marijuana isn't working?

I just started weed and i been using a bong and it just like doing a joint but instead its in glass and a stem and the weed goes into the bowl light the bowl take half the bowl down or clear the full bowl then depending on if ur doing a full bowl or a half then your clearing the full thing if ur doing a half bowl then clear the chamber then breath in and then out but yet was wondering if it helps

Since I've moved to Australia I've been taking generic keppra and lamictal. I took the same medicine in the USA, but I'm feeling some intense side effects from the generic medicine here. My friend that's a pharmacist said it could be from fillers that are used in the medicine. I'd pay for the name brand but it's very expensive. And then the stress from the financial strain can cause a seizure. Anyway, could there be something in the medicine that I'm not aware of?

I know it can help with epilepsy, 23years ago my rollups fags was spiked with cannabis, and it helped control my seizures, even though I never knew it was in them, I found out I was seeing a drug addict, so I left him after a 4 week, relationship. But now I wish I could have it legally.

I have found lately that after a seizure I am so much more sensitive to criticism and to well basically anything emotionally draining.
Am I the only one?
I'm hoping this is normal!

He's getting up to 14 seizures a night he's no quality of life he's down for vagus nerve simulation but I don't want him to get it because I've read too much stories about how it doesn't work and some horror stories there's limited options in ireland for epilepsy has anyone ever went overseas to UK or Scotland or anywhere without doctors referral an in go private with self referral for treatment I can't bear to c my beautiful son suffer anymore its not fair n him I'm willing to pay whatever I… read more