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He's getting up to 14 seizures a night he's no quality of life he's down for vagus nerve simulation but I don't want him to get it because I've read too much stories about how it doesn't work and some horror stories there's limited options in ireland for epilepsy has anyone ever went overseas to UK or Scotland or anywhere without doctors referral an in go private with self referral for treatment I can't bear to c my beautiful son suffer anymore its not fair n him I'm willing to pay whatever I… read more
Have you read about the Responsive Neurostimulation (RNS)? There are several members of this site that have had it. You may want to talk to them about it.
Thank you so much you have given me hope have you found any of the surgeries have worked for you
My Epilepsy is drug resistant. I've had five surgeries, possibly six soon and iPad my Epilepsy for 21 years when I was first diagnosed at six years old I would have the same amount daily the neurologist who diagnosed me said I wouldn't even graduate high school. I'm a few years from having my bachelor degree, you,your son & family never give up!
" The moment you give up is the moment you let someone else win."
- Kobe Bryant
Jen did you see the link I posted for you Ireland epilepsy foundation etc?
