What kind of seizures does VNS help reduce? What "requirements" must you meet to have it? I see my neurologist next week and I'm going to ask him about it. I thought I would get your opinions first.
VNS's help with grand mal, petit mal and partial seizures. BUT you have to stay on medication, also. I take very high doses of Keppra and Zonegran every day. Now, I was one of the first 1,500… read more
Anyone that feels uneasy about their medicine, talk
to your Doctor & have him explain what the "side effects" would be. Usually
you can find a "different medicine," if the one your
using has… read more
I am still told how many new messages there are each day, but I only have access in the list of a portion of those new messages. For example, right now it indicates that I have 11 more notifications, but there are not any in the new messages box for me to click on. This started a few weeks ago. And I have already contacted the managers of the site (and I was not the first to tell them) and their techs are working on the problem.
I have to click on the bell to actually get a number too!
98% of my seizures happen during my REM sleep usually after 3am or later in the morning. I'm pretty much on a two week cycle. I have been on numerous AEDs and nothing seems to break the cycle. Was wondering if anyone has these types of seizures and have they found a treatment that has help reduce these type of seizure activity?
I was told I needed more sleep because the REM cycle being skipped during my night seizures.
My parents found out that I had Epilepsy when I was around 1 yr of age. They had just got home with me . They laid me Dow shortly . At the time I was moving. Then I went from moving to looking dead… read more
I eould like to post Brian's gofund me here in tbe group if it is allowed. We are facing a (Phone number can only be seen by MyEpilepsyTeam users) deductible just to start with before insurance even kicks in! And no secondary or gap insurance Brian hasn't been able to work at all since his July 4th seizure. And my disability income barely pays our normal expenses.
You can do a bank account in his name. They donate in your name to the account and this is there for his treatment when needled.
Does anyone have any tips to make swallowing pills easier?
Take them slowly
You’re welcome
I ask this because the site owners and techs are not able to provide an additional search option to search for New Members. And there have been too many New Members over the years who have come once or a few times and gotten frustrated and left because they do not get the true benefit of being embraced by a large enough team to not only make them feel welcome but also be able to provide answers and often personal experience regarding any related to seizures (types, symptoms, auras, side… read more
What does the team want to achieve in the future
i want to know as much as possiable about it they r talking about doin this on my daughter
What is your question about it. I might be able to answer it for you. My name is Manny Gomez nice to meet you. I have one in me right now. I just had my 3rd one two years ago. I am supposed to get a… read more