I like to feel I am helping everyone I can when I can so I do what ever I can and do my best.

I’m alway telling how great it is being on this site

I do like to give feedback, and receive it as well. I try to pass on whatever i learn at my support group as well.

Those of us who have Epilepsy must do our duty to help others who have
just been diagnosed or who have questions about what will help make thier lives easier. I've had Epilepsy for fifty nine years, sincee I was six years of age.
Yes, that makes me sixty five !!!!
Yes, it wasn't easy to learn with Epilepsy, I've had some pitfalls but have also
had some major achievements. I found what I call my "Miracle drug" after having my first GrandMAL at age 15~ The drug was Tegretol, then experimental in the United States. Had my first GrandMAL at age 15 in 1969.
Just adding Tegretol to my other medications stopped any seizures cold.
Didn't have another till a Neurologist at Columbia Prestberiyan took me off of
it in 1986, fearing liver damage.
I warned her "don't do it you'll be sorry" She promised "You won't have seizures
I'll give you something that will prevent them" WRONG WRONG WRONG !!!
I went from zero GrandMALS to 9 aday for 1 full week !!!!
What saved me was a call to my then insurance agent. His wife had Epilepsy.
I asked for her doctor's name/telephone number saying I needed it ASAP !

That was 43 years ago and thanks to Dr. Jeffrey T. Kessler who saved my life
by putting me back on Tegretol I'm GrandMAL seizure Free.

I found this site when I felt the loneliest in my life. I have been given and been able to give the support that I have not been able to find anywhere else in my life. Even though we are not epileptologists, our experience is useful here...not to be used as a replacement for doctors but rather as a tool to maybe get questions asked sooner rather than later in our journeys. What I mean by that is that when I hear others experiences, I have been able to understand that things I wasn’t aware of, or thought were not really an issue, may be something more and how to communicate to my doctors about it so they could be addressed.

There are a few other ideas going through my head but I’m beginning to feel confused...gotta love it 🙄

Sum it up with I love the caring and support I receive here and love even more the opportunity to give it back.