I’m already on vimpat and lamotrigine and they’re adding nuerontin for muscle spasms. Has anyone had any problems or bad side effects with Nuerontin?
Yea I did but everyone reacts differently to stuff I Got a rash
Does anyone taking seizure meds find their hair thinning or hair loss to become more problematic the longer you stay on it? I've been on zonegran for over a yr now and I've been steadily losing my hair in chunks. Once my meds were upped after some scary seizures a few months ago, it seems like it's excessive loss. Chunks of hair at a time. My doc says I'm imagining it and it's "part of epilepsy" but I don't know.
My neuro is reducing my Carbamazepine and wanting to add an additional med to better control the seizures. Has anyone else has this scenario and if so what med works well in tandem with Carb? I am new to the seizure world.
I was on it once but they switched me to Lamottrigine
Gabapentin is not supposed to be given to an epileptic who has focal seizures because it will usually trigger more of them (as is the case of too much of any anticonvulsant will do for epileptics). And Gabapentin may worsen absence and myoclonic seizures, so caution should be observed if the patient might have these seizure types.
Details on Gabapentin from the Epilepsy Foundation
I experienced a lot more seizures when my neurologist… read more
First, a link to the US National Institute of Health about it: https://ods.od.nih.gov/factsheets/VitaminD-Heal...
As for me, my primary care started me on it because my level was low because I was… read more
I have always wondered about that, as I often get terrible headaches, sometimes feeling like I want to throw up.
Yes. I had migraines at the same time as a started having epileptic seizures as a teenager.
Have trouble feeling awake all day long. I mostly get my seizures when I am sleeping. And can tell when I have had one, I wake up no energy and sometimes very week muscles. I love to quilt but I just sit there as though I am in another world. Can't concentrate. I take Klonipin and Gabapentin. I sometimes feel like I am losing my mind. I have only been diagnosed for about 3 years and that was a slow process and I had doctors that did not believe I was sick. If anyone has any ideas, I would… read more
Keep us posted on what is going on
Have anyone taken this medicine or is on it.
What are side effects and how did you cope with it. Does the med work. Any information.
I'm on epilm at the moment but Zonisamide is slowly being added at the same time I'm slowly coming off eplim, so I'm having change over of med and wondered how it will effect me.
It have been making me very tired.
How is what I'm taking at the moment.
Morning... 600mg epilm & 50mg Zonisamide
Afternoon... 300mg epilm
Evening... 600mg epilm & 50mg Zonisamide
I like being on Zonisamide!
I've been on it for years and my seizures keep getting worse. Now I'm having multiple forms of seizures instead of just tonic clinic like I had originally. And Dr keeps upping my dosage instead of switching meds even though I've requested it repeatedly. I sought out a different Dr and the new one kept me on same med (zonisimide) and dosages and seizures keep getting more frequent and worse and are now coming in clusters that sometimes last for a week!. Only thing nee Dr did was add Nayzilam… read more
Please note how both Drs agreed on same meds. Just cause you think you know better doesn't mean you're right. Dr's not listening to you because they do know better. No doctor allows a patient to… read more