I was on dilantin for 30 years... until my blood work came back showing my liver affected by the Dilantin. So neuro took me off of Dilantin asap! Since then 10 years Ive been on a roller coaster ride of seizure meds. 2 years no meds. Now seizures came back but with more dejavuu seizures. I am wondering if Dilantin a person can go back on it? Or is Dilantin not so safe anymore??
Each person is different RE: What meds
they can take
Ask you Doctor, "why," back on the same
medicine. He should explain to you, "his
You can tell him your thoughts. "Maybe,"
you will try… read more
I am trying to figure out how it works! thankyou
Ever since I started Dilantin in November 2022 I have been experiencing chest pain and panic attacks especially when I use my Medical Marijuana. I am now experiencing an increase in my PTSD due to not being able to smoke. Please help.
My friend experienced withdrawal from it. And then a deep depression.
I was on high doses of Dilantin for about 40 years. I was sure it was messing with my memory but the medical profession refused to admit it. Finally, doctors have come to acknowledge that long term use does, in fact, have negative effects on brain functioning and have taken me off it. I have tried a number of different drugs in the past ten years. Right now I am on Kepra and clobazam. The problem is, nothing is working as well as Dilantin did. I raised my family without having seizures and… read more
I'm 51 been taking Dilantin since 4th grade. My gums have serious issues
I am almost 6 years seizure free. At my annual neurology appointment yesterday, my neurologist suggest that since I have been taking Dilantin for almost 30 years, that I should consider reducing the amount that I take until I am completely off Dilantin. I am and would still take Keppra. I am very nervous about getting off Dilantin and am wondering if anyone has had ill effects from taking Dilantin over a long period of time. Thank you for your feedback
I took Dilantin for a few years as a child. I'm not sure why my doctor switched me from Dilantin to Tegretol, but I'm assuming it's because I broke through on it. I really liked it, but I suppose what I'm on now is best for controlling my seizures.
Hi everyone ive been on 3or 4 meds it seems to make things worse im waiting to see a new nerologist have any of you just decided not to take meds?
Can Dilantin eliminate seizures!!!
I've been taking Dilantin for about 20 years now. 500 mg daily. No seizures.
Just had mine done yesterday also. Hope to get the results by the time I go to my yearly physical next month
Thank you @A MyEpilepsyTeam Member