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Top 10 Search Results for "Dilantin"

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Dilantins Effects On Bones

Dilantins Effects On Bones

I am almost 6 years seizure free. At my annual neurology appointment yesterday, my neurologist suggest that since I have been taking Dilantin for almost 30 years, that I should consider reducing the amount that I take until I am completely off Dilantin. I am and would still take Keppra. I am very nervous about getting off Dilantin and am wondering if anyone has had ill effects from taking Dilantin over a long period of time. Thank you for your feedback

A MyEpilepsyTeam Member said:

I had been on everything except not in the same combinations. Phenobarbitol, Zarontin, Malontin, Valium, Tegtretol and many more. I was diagnosed at 7 so cannot remember it all. Doctors did not take… read more

posted about 2 months ago

Is Anyone Still Taking Dilantin (Phenyytoin) For Epilepsy?

Is Anyone Still Taking Dilantin (Phenyytoin) For Epilepsy?

I was on high doses of Dilantin for about 40 years. I was sure it was messing with my memory but the medical profession refused to admit it. Finally, doctors have come to acknowledge that long term use does, in fact, have negative effects on brain functioning and have taken me off it. I have tried a number of different drugs in the past ten years. Right now I am on Kepra and clobazam. The problem is, nothing is working as well as Dilantin did. I raised my family without having seizures and… read more

A MyEpilepsyTeam Member said:

GOOD FOR YOU!!! I hope everything works out for you.

posted 13 days ago

Dilantin Users...

Dilantin Users...

I was on dilantin for 30 years... until my blood work came back showing my liver affected by the Dilantin. So neuro took me off of Dilantin asap! Since then 10 years Ive been on a roller coaster ride of seizure meds. 2 years no meds. Now seizures came back but with more dejavuu seizures. I am wondering if Dilantin a person can go back on it? Or is Dilantin not so safe anymore??

A MyEpilepsyTeam Member said:

Each person is different RE: What meds
they can take
Ask you Doctor, "why," back on the same
medicine. He should explain to you, "his
thoughts."
You can tell him your thoughts. "Maybe,"
you will try… read more

posted about 4 years ago

Dilantin

Dilantin

I am trying to figure out how it works! thankyou

A MyEpilepsyTeam Member said:

Thanks

posted over 4 years ago

Phenobarbital

Phenobarbital

As a child, I took Phenobarbital at night, and Tridione in the daytime. Anyone else heard of this? My new Dr.'s give me funny looks, but I know what I was taking. I was 17 when I stopped taking it.

A MyEpilepsyTeam Member said:

I used to take Phenobarbital

posted 3 months ago

Dilantin

Dilantin

Can Dilantin eliminate seizures!!!

A MyEpilepsyTeam Member said:

I've been taking Dilantin for about 20 years now. 500 mg daily. No seizures.

posted over 2 years ago

Does Anyone Not Take Meds

Does Anyone Not Take Meds

Hi everyone ive been on 3or 4 meds it seems to make things worse im waiting to see a new nerologist have any of you just decided not to take meds?

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member its actually an interesting. 1930s Mexicans imported marijuana (cannabis) to the usa. the usa didnt know about the word cannabis and marijuana (despite using cannabis in… read more

posted almost 3 years ago

Does Your Seizure Medicine/s Make Your Teeth/gums Bleed?

Does Your Seizure Medicine/s Make Your Teeth/gums Bleed?

I brush my teeth 2x a day, but lately, I've noticed bleeding in my mouth & when I spit. I went to the dentist & she said there's nothing wrong with my teeth, no cavities or anything. I asked her why I get blood in my mouth & she said it might be my seizure medications.

A MyEpilepsyTeam Member said:

I used warm salt water to rinse my mouth out every day. It seemed to help.

posted 2 days ago

What Is Your Experiences After The Seizure? Or A Side Effect From A Med(s)?

What Is Your Experiences After The Seizure? Or A Side Effect From A Med(s)?

i am doing a survey of what is the before and/or after effects of a seizure? and if there is a side effect(s) of this or that meds?
i will start...
i had every med (until surgery) known to man and i had rashs, bumps, loss or gain weight... on top of depression, anxiety, sleepy, dizzy, ect.
when i had a bad seizure, sometimes my memory was gone (for a few sec). my body was like jell-o (when i had a grand mal), i had a bad headache, ect.
my question is... what are your experiences?

A MyEpilepsyTeam Member said:

I get dizzy before a episode. Feel a aura then I go out. I'm on divalproex & oxcarbamazipine. I have a seizure every 7 to 11 days

posted 2 months ago
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