Dilantin and epilepsy | MyEpilepsyTeam

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Dilantin Users...
A MyEpilepsyTeam Member asked a question 💭

I was on dilantin for 30 years... until my blood work came back showing my liver affected by the Dilantin. So neuro took me off of Dilantin asap! Since then 10 years Ive been on a roller coaster ride of seizure meds. 2 years no meds. Now seizures came back but with more dejavuu seizures. I am wondering if Dilantin a person can go back on it? Or is Dilantin not so safe anymore??

A MyEpilepsyTeam Member

Each person is different RE: What meds
they can take
Ask you Doctor, "why," back on the same
medicine. He should explain to you, "his
thoughts."
You can tell him your thoughts. "Maybe,"
you will try… read more

Dilantin
A MyEpilepsyTeam Member asked a question 💭

I am trying to figure out how it works! thankyou

A MyEpilepsyTeam Member

Thanks

I Wanted To Ask If Anyone Has Been On Depakote? If So Did You Ever Have Chest Pain With It? Was It Effective?
A MyEpilepsyTeam Member asked a question 💭

I have focal seizures and I have not had success with several meds. Is there any other bloodwork that was effective in diagnosing epilepsy? or non epileptic seizures?

A MyEpilepsyTeam Member

Hi Samantha
I understand how frustrating it must be to not find anything that will help. I have been on Depakote and have tolerated it well. I also take dilantin and lamictal. I used to take heavier… read more

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Keppra/levetiracetam Or Lamotrigine/lamictal
A MyEpilepsyTeam Member asked a question 💭

I am currently on Dilantin and does not seem to be processing through my body the same after taking it for 40 years and been having spikes in my phenytoin levels over 30. I also have been experiencing more side effects. My neurologist is suggesting to switch me to keppra/levetiracetam or lamotrigine/lamictal. Any thoughts or experiences?

A MyEpilepsyTeam Member

I'm taking both as a combo. Works great for me

Greetings!My Name Is Jackson Casey.My Wife Has Developed Reflex Over Last 3 Years.Can Dilation Seizure Meds Taken Over50 Years Cause This?
A MyEpilepsyTeam Member asked a question 💭

Can you develop Reflex after taking Dilantin
For over 50 years?

A MyEpilepsyTeam Member

Here is a link to read, https://www.drugs.com/dilantin.html

I Took Dilanin, As Well Ad Many AEDs. I Vaguely Rmember At Least One Being Bad For Gums In The Mouth.
A MyEpilepsyTeam Member asked a question 💭

What should I ask/tell my Dentist?

A MyEpilepsyTeam Member

I worked for her many years ago, when her kids were small. She knew my Mom and about my seizures years ago. She said I should come in to get a full Teeth Cleaning 3 times a year, rather than 2.

Is Dilantin A Common Medication Used By People In This Community?
A MyEpilepsyTeam Member asked a question 💭

I know it is one of the older medications out there. I would like to know positive or negative experiences you had while taking this drug.

A MyEpilepsyTeam Member

I was on Dilantin for many, many years when I was young. I also experienced gum problems and dizziness. I was weaned off it though when I was about 35.

Dilantin
A MyEpilepsyTeam Member asked a question 💭

I took Dilantin for a few years as a child. I'm not sure why my doctor switched me from Dilantin to Tegretol, but I'm assuming it's because I broke through on it. I really liked it, but I suppose what I'm on now is best for controlling my seizures.

A MyEpilepsyTeam Member

Since then, I've been on numerous forms of Tegretol,, Tranxene for a short time, and currently, Leviteracetam(Keppra, in addition to Tegretol). Chelsey, what does VNS stand for?

Pregnancy And Epilepsy Medicines?
A MyEpilepsyTeam Member asked a question 💭

I'm on several epilepsy meds and have been warned that pregnancy could be dangerous and high risk. My seizures are still uncontrolled, mostly complex partial/secondarily generalized. Was wondering if any women suffering from uncontrolled seizures and/or on Dilantin, Vimpat and/or Lamictal have had children, and if so, what your experiences were? I want kids more than anything :(

A MyEpilepsyTeam Member

I understand completely. I got pregnant. Even on birth control it happens. As it turns the only thing that my daughter has is pervasive development disorder . It's on the autism tree. She's very… read more

Mysoline
A MyEpilepsyTeam Member asked a question 💭

when i was a child (10-16) years old i was prescribed but when i left school the doctors changed my medication. why was this when mysoline was controlling my epilepsy. whilst on mysoline i was having 1 maybe 2 fits aweek but since they change my medication my fits have increased and i am unable to work

A MyEpilepsyTeam Member

I would not pay attention to a School GP, who I think told you to go "Cold Turkey". I know some people stop having seizures naturally. Find a Neurologist or Epileptologist who is very observant, can… read more