Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign up Log in
Personal Assistant What is This Site Help Center Crisis
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Dilantin

A MyEpilepsyTeam Member asked a question 💭
Stanhope, NJ

I took Dilantin for a few years as a child. I'm not sure why my doctor switched me from Dilantin to Tegretol, but I'm assuming it's because I broke through on it. I really liked it, but I suppose what I'm on now is best for controlling my seizures.

September 21, 2016
•
View reactions
A MyEpilepsyTeam Member

Since then, I've been on numerous forms of Tegretol,, Tranxene for a short time, and currently, Leviteracetam(Keppra, in addition to Tegretol). Chelsey, what does VNS stand for?

September 30, 2016
A MyEpilepsyTeam Member

I have sensitive gums, too, but I don't recall if Dilantin irritated them

September 28, 2016
A MyEpilepsyTeam Member

I'm on Keppra 250mg x2, Epilim CR 500mg and 300mg, Lamictin 175mg and 200mg, urbanol 10mg, but that seems to stabilize me

September 23, 2016
A MyEpilepsyTeam Member

I took Dilantin for years. So many side effects with it and became seizure free at 16.

September 22, 2016
A MyEpilepsyTeam Member

I took alkinds of med and seen alkinds of Doctors But after switching drs so much my familey dr sent me to a Neurolgy dr that just deals with epilepsy. Dr Barkley put me on XR Brand Tegretol and Brand Lamictol since taking theses I am sz free, later found out hes on the board and is highly Rated

September 21, 2016 (edited)

Related content

View All

I Am 9 Yrs Seizure Free And Have Been Taking 400 Mg/day Of Dilantin (plus 1 Other AED). Seizure Control Was Achieved By Surgery.

A MyEpilepsyTeam Member asked a question 💭
Dartmouth, NS
November 1

Dilantin

A MyEpilepsyTeam Member asked a question 💭
Jacksonville, FL
February 15, 2023

Has Anyone Taking Dilantin Experienced Not Being Able To Have Sex And And Did You Change Meds?

A MyEpilepsyTeam Member asked a question 💭
Edmond, OK
February 26, 2023

Bone Density and Epilepsy: Are Antiepileptic Drugs a Risk for Osteoporosis?
Breakthrough Seizures: Causes, Symptoms, and Treatment
What You May Not Know About Abdominal Epilepsy
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a Member? Log in