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Top 10 Search Results for "Diastat AcuDial"

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Generic Keppra Article

Generic Keppra Article

I just read this article on generic keppra causing seizures: https://epilepsytalk.com/2010/07/17/keppra-generic-seizure-drug-contributing-to-more-seizures-side-effects-and-death/ Has anyone experienced this and if so, did taking the non-generic form fix the issue?

A MyEpilepsyTeam Member said:

Hi Nicky I'm on 1000 mg of Keppra morning ,same in the evening I've never had any trouble with supply ? This with your doctor/ neuro as the 1K tablets should be available

posted over 1 year ago

New Job And Rescue Med

New Job And Rescue Med

I got a new job. Going in the office on Tuesday or maybe tomorrow. Anyway, should I bring my rescue med to work? I think I have refills on it, but if not, I can ask my neurologist for another thing of Diazepam. My seizures are most of the time serious. My last one I was in status and one before that I had a cluster and over 10 years ago when I had them regularly, they all were clusters of 10 or more except when I was in status. I would be in the office 2 or 3 days a week, but I wasn't sure just… read more

A MyEpilepsyTeam Member said:

Unfortunately I had a couple of Partials in 2 different clinics I worked in . In one case I was lone working ( shouldn't have been allowed but they made me cover someone's maternity leave , despite… read more

posted 9 months ago

Dose Anyone Take Xcopri And Had Any Problems With It. Also Know As Cenobamate

Dose Anyone Take Xcopri And Had Any Problems With It. Also Know As Cenobamate

My Nero wants me to go on xcopri while decreasing my onifi has anyone taken or is anyone on this drug and had any experiences with it and what kind of side effects if any you had on it.its a fairly new drug A.K.A. cenobamate any input is helpful. Thank you.

A MyEpilepsyTeam Member said:

I have. Didn't work for me, but it has no side effects either.

posted 3 days ago

Do Any Of You Have Rectal Emergency Meds?

Do Any Of You Have Rectal Emergency Meds?

Do you carry rectal emergency meds like Diastat and how do you feel about people using that on you in public? My son has this meds and he's still young but just wondering how he would feel when used when he is older?

A MyEpilepsyTeam Member said:

Agreed. I have the rectal medication. The only thing I would keep in mind is that it might be something strangers would not know how use or even be comfortable using it. I'm not trying to shoot down… read more

posted almost 6 years ago

How To Work Around A Negative Feeling Caused By Meds To Stop A Seizure?

How To Work Around A Negative Feeling Caused By Meds To Stop A Seizure?

So, basically, I just realized that the midazolam makes me feel more negative. I take it to stop gran mals, but it just occurred to me that it’s making me feel bad, even though I never understood before why I felt that way.

A MyEpilepsyTeam Member said:

Try vitamin supplement B6 100mg. That helps me stabilize my moods.

posted over 2 years ago

For Those Of You Who Have Already Spent The Extended Time In The Seizure Center (24 Hours A Day For As Many Days To Trigger Seizures)

For Those Of You Who Have Already Spent The Extended Time In The Seizure Center (24 Hours A Day For As Many Days To Trigger Seizures)

What was your experience like? I am going in the not to distant future (I should know when after I meet with a neurologist from Brigham and Women's Hospital this morning. I have never been to a center or have any testing (that I know of) other than annual (or every 2 years) EEG and the initial portable EEG for 48 hours when I started with my first neurologist back in 1997. Because my older brother had open heart surgery as a few months old, the focus back in the early 1980s after I started… read more

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member Thank you very much for the heads up and the advice!

In my case, they will be completely working me off of Carbamazepine (been on that one for 24 years), so hopefully that… read more

posted 3 months ago
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Does Anyone Have A Child With Drop Seizures/head Drops?

Does Anyone Have A Child With Drop Seizures/head Drops?

I have a three year old who started having seizures in June. She had drop, myoclonic and a few real short grand mals. She was put on onfi after a four day visit to children's and that didn't help anything. So they added keppra and it stopped the grand mals. Went back to children's for another eeg in July and they added depakote and it helped tremendously with her drops but she still has some after her afternoon nap into the evening. Mostly head drops but a full drop here and there. Her eeg in… read more

A MyEpilepsyTeam Member said:

My 9 year old daughter had and still has all the same type of seizures that you describe your child did and then some other kinds too. The keto diet worked wonders until we stopped it due to… read more

posted over 6 years ago

Occipital Lobe Epilepsy

Occipital Lobe Epilepsy

Does anyone have occipital lobe epilepsy?? I already had temporal lobe and was recently diagnosed with this, I’m just really confused and am experiencing a lot of weird things and was hoping there was someone on here I could talk to that could help me and relate/:

A MyEpilepsyTeam Member said:

Thanks Margery, I have to remind myself when dealing with doctors that we are experts on epilepsy because we know it intimately by having it, and that doctors may have studied it in depth but can… read more

posted 4 months ago

Auditory Auras

Auditory Auras

I sometimes experience the sound of a distant explosion - only I hear it- is this another kind of aura?

A MyEpilepsyTeam Member said:

Yes it is

posted over 5 years ago

48 Hour EEG Vs. Conventional EEG?

48 Hour EEG Vs. Conventional EEG?

I just got home from a neuro appointment-after a significant aura last Thursday he wants to do a 48 hour ambulatory EEG. I was diagnosed with epilepsy in February based on a conventional EEG in the hospital. If any of you have had the conventional EEG followed by the 48 hour one have the results of the 48 hour EEG contradicted the conventional test? I'm about to make several major life/career adjustments based on my February diagnosis, just want to be sure I'll be doing the right thing. Thanks… read more

A MyEpilepsyTeam Member said:

I get my reading from mine sept 9th
I was diagnosed with epilepsy over 20 years ago with a conventional one since they’ve started back and changed he did the ambulatory one

posted 6 months ago