I’d like to hear from other women with Catamenial Epilepsy and what their symptoms and experiences are like , are they monthly? How do you handle your monthly hormonal cycle?

I want to know how many friends are by ur side when u found u have epilepsy

I just read this article on generic keppra causing seizures: https://epilepsytalk.com/2010/07/17/keppra-generic-seizure-drug-contributing-to-more-seizures-side-effects-and-death/ Has anyone experienced this and if so, did taking the non-generic form fix the issue?

Got results from mri I wish they would not send them to me until after I see doctor lol
So I don’t want to google it cause I know google will have me dying. I know we are not doctors but was wondering maybe someone has had results something like this are understood what it is saying
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FINDINGS: There is an abnormality of the right hippocampal formation. Ventrally, the hippocampal head and proximal body are symmetric and normal in appearance. At approximately the mid body, reference… read more

I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first

Since having my first several seizures a I've realized that there are gaps in my memory of single events going back maybe 15 years. I'm very sad when my husband or friends are talking about an event from the past and then ask me if I remember: when we went there... what we did ... etc. Sometimes I recall SOME of the event after discussing and getting a few details about it.

There are also events from the same time span that I DO recall
In my research I (finally) discovered a type of… read more

My husband had his 2nd Grand Mal Seizure on Sunday afternoon, he has slept since then only waking for meds, bathroom, and to eat what little I could feed him. He is very altered cognitively and has pain on left side of head. Balance is non-existent. Needless to say I haven't slept since Saturday night...

Do you carry rectal emergency meds like Diastat and how do you feel about people using that on you in public? My son has this meds and he's still young but just wondering how he would feel when used when he is older?

So, basically, I just realized that the midazolam makes me feel more negative. I take it to stop gran mals, but it just occurred to me that it’s making me feel bad, even though I never understood before why I felt that way.