I’d like to hear from other women with Catamenial Epilepsy and what their symptoms and experiences are like , are they monthly? How do you handle your monthly hormonal cycle?
Monthly hormonal cycles are now a distant memory. It was TOUGH! I felt like every aspect of my epilepsy was aggravated geometrically times 10 each month. What an ordeal
Great info here! Nice people… read more
I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first
I suffer from deja Vu during my aurad
My husband had his 2nd Grand Mal Seizure on Sunday afternoon, he has slept since then only waking for meds, bathroom, and to eat what little I could feed him. He is very altered cognitively and has pain on left side of head. Balance is non-existent. Needless to say I haven't slept since Saturday night...
For me, I would usually black out for 10-20 minutes. Then I could see and hear but not talk yet. That would take another 20-30 minutes.
Hi everyone, I wanted your thoughts about what your would do if you were in my situation. I moved about a year ago to Central California and have to find a new neurologist. My existing one from Southern California is good but he is too far away now. The dilemma I'm facing is whether or not I should bother going to an Epilepsy Level 4 Center in the Bay Area. I've already had surgery twice, and probably wouldn't go for third one even if there was an opportunity in hopes of controlling my seizures… read more
Kevin I black out when I have mine and can’t talk don’t know if it’s similar but always been on meds no surgery My doc isn’t the best but life goes on. Just got my meds adjusted hope it works
I want to know how many friends are by ur side when u found u have epilepsy
Since having my first several seizures a I've realized that there are gaps in my memory of single events going back maybe 15 years. I'm very sad when my husband or friends are talking about an event from the past and then ask me if I remember: when we went there... what we did ... etc. Sometimes I recall SOME of the event after discussing and getting a few details about it.
There are also events from the same time span that I DO recall
In my research I (finally) discovered a type of… read more
Good strategy Michelle!
My husband suddenly started having grand mal seizures about 6 years ago completely out of the blue and was diagnosed with epilepsy about 6 months after his first cluster of seizures. He was young (27) fit and healthy and strong as he is a farmer, since the epilepsy began he has changed in almost every way... can anyone else relate?