Connect with others who understand.

sign up log in
About MyEpilepsyTeam

Connect with others who understand.

sign up log in
About MyEpilepsyTeam
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Diastat AcuDial"

reset

Banzel

Banzel

Has anyone taken banzel and it was successful but then quit working?

A MyEpilepsyTeam Member said:

My 6 yr old has Partial Complex seizures..And multi drug resistant until Banzel..Still on Keppra TID(3X/day)..The 1st wk, she had a tonic clonic seizure and didnt respond to 2 doses of Diastat
read more

posted 6 months ago

Generic Keppra Article

Generic Keppra Article

I just read this article on generic keppra causing seizures: https://epilepsytalk.com/2010/07/17/keppra-generic-seizure-drug-contributing-to-more-seizures-side-effects-and-death/ Has anyone experienced this and if so, did taking the non-generic form fix the issue?

A MyEpilepsyTeam Member said:

Hi Nicky I'm on 1000 mg of Keppra morning ,same in the evening I've never had any trouble with supply ? This with your doctor/ neuro as the 1K tablets should be available

posted about 2 years ago

How To Work Around A Negative Feeling Caused By Meds To Stop A Seizure?

How To Work Around A Negative Feeling Caused By Meds To Stop A Seizure?

So, basically, I just realized that the midazolam makes me feel more negative. I take it to stop gran mals, but it just occurred to me that it’s making me feel bad, even though I never understood before why I felt that way.

A MyEpilepsyTeam Member said:

Try vitamin supplement B6 100mg. That helps me stabilize my moods.

posted about 3 years ago

Do Any Of You Have Rectal Emergency Meds?

Do Any Of You Have Rectal Emergency Meds?

Do you carry rectal emergency meds like Diastat and how do you feel about people using that on you in public? My son has this meds and he's still young but just wondering how he would feel when used when he is older?

A MyEpilepsyTeam Member said:

Agreed. I have the rectal medication. The only thing I would keep in mind is that it might be something strangers would not know how use or even be comfortable using it. I'm not trying to shoot down… read more

posted over 6 years ago

Does Anyone Have A Child With Drop Seizures/head Drops?

Does Anyone Have A Child With Drop Seizures/head Drops?

I have a three year old who started having seizures in June. She had drop, myoclonic and a few real short grand mals. She was put on onfi after a four day visit to children's and that didn't help anything. So they added keppra and it stopped the grand mals. Went back to children's for another eeg in July and they added depakote and it helped tremendously with her drops but she still has some after her afternoon nap into the evening. Mostly head drops but a full drop here and there. Her eeg in… read more

A MyEpilepsyTeam Member said:

My 9 year old daughter had and still has all the same type of seizures that you describe your child did and then some other kinds too. The keto diet worked wonders until we stopped it due to… read more

posted almost 7 years ago

Auditory Auras

Auditory Auras

I sometimes experience the sound of a distant explosion - only I hear it- is this another kind of aura?

A MyEpilepsyTeam Member said:

Yes it is

posted about 6 years ago

New Job And Rescue Med

New Job And Rescue Med

I got a new job. Going in the office on Tuesday or maybe tomorrow. Anyway, should I bring my rescue med to work? I think I have refills on it, but if not, I can ask my neurologist for another thing of Diazepam. My seizures are most of the time serious. My last one I was in status and one before that I had a cluster and over 10 years ago when I had them regularly, they all were clusters of 10 or more except when I was in status. I would be in the office 2 or 3 days a week, but I wasn't sure just… read more

A MyEpilepsyTeam Member said:

Unfortunately I had a couple of Partials in 2 different clinics I worked in . In one case I was lone working ( shouldn't have been allowed but they made me cover someone's maternity leave , despite… read more

posted over 1 year ago

Dose Anyone Take Xcopri And Had Any Problems With It. Also Know As Cenobamate

Dose Anyone Take Xcopri And Had Any Problems With It. Also Know As Cenobamate

My Nero wants me to go on xcopri while decreasing my onifi has anyone taken or is anyone on this drug and had any experiences with it and what kind of side effects if any you had on it.its a fairly new drug A.K.A. cenobamate any input is helpful. Thank you.

A MyEpilepsyTeam Member said:

I’m on it, plus 3 others, and I only take it at night. It seems to help with my nightly seizures. I’m happy to be off Onfi. I’ve been on that one too but it didn’t seem to help me much. I hope it… read more

posted 5 months ago

Anyone Else Experience This?

Anyone Else Experience This?

Whenever I have grand mals (and only grand mals) I suffer from "bradycardia" during them. It happens all the time, and I had no idea until it showed up on a EEG I had done. I'm still waiting to have a diagnoses, anyways my question is-
Does anyone else suffer from that, and what causes it? My neuro said it could be a heart, brain, or blood pressure thing. And I guess to follow up, does it happen all the time or only with grand mals like me. Thanks for reading :)

A MyEpilepsyTeam Member said:

It could be anything will cause to have seizure, last EEG my neurologist told me because one of the back head nerve cause me having seizure and I been diagnosed grandmal since I was kid , and I still… read more

posted over 4 years ago

Who Is Experienced With The Various Free Online Meetings?

Who Is Experienced With The Various Free Online Meetings?

I am experienced with ZOOM, and I have experience with Skype (though a lot of the details are deep in memory with only some coming back when in the intro meeting with Bryan Martin)
I have signed up on Webex, but it does not provide all of the details of the features available in a free meeting. Is anyone experienced with the free meeting version there? I am seeking to find out if the language translator feature that is definitely available in the Standard and Pro versions of meetings is… read more

A MyEpilepsyTeam Member said:

Thanks BryanMartin as If it is that way, John, I can zoom in when its the correct time.
BryanMartin, thank you very much for your help.

posted 6 months ago