Thanks Randy
I didn’t freak out when I couldn’t find my money at the grocery store. What happened is that I had put it in another section of my wallet and FORGOT ugh
I don't care who you are what you succeed at what don't. Everyone is to forget or fail of all different reasons, deferent things, and many of different times of life!! Life for everyone has times of… read more
Lena we are like family here. I feel guilty because when I’m well i can get so busy that I forget to check in on rveryone or post an update. I have to learn to slow down. Being part of this community… read more
This helps tremendously.
I have Tonic Clonic seizures as well as Absent and Myoclonic. I can deal with the twitches but the muscles stiffening up causes so much pain.
You are welcome
My seizures are from my anaplastic astrocytoma brain tumor and nerve damage had surgery 1999,... 33 rounds of radiation and that 15 rounds of chemo been a long journey.. so far radiation has aged my brain 30yrs so I get to experience old age I'm 56 with an 86 Year old brain having to admit I'm disabled and giving up driving was the hardest thing
Oh god my son just got the vns in Dec 2023 I hope I didn’t make a mistake for him after reading this he’s physically 31 but mentally 4 with autism too and I swear that device doesn’t help him either
The child can’t take a nap or go to sleep rather her meds is taken because she steady having seizures for less than minute in sleep daily. And it all started when doctor recommended we go down on doses for kreppa.
When you see the Dr. ( Neurologist / Epileptologists ) in your next appointment, let him/her know about your about the seizures starting back up. The Dr. Can then check your blood levels and… read more
I have tinnitus daily, and I have a VNS,
Thanks for your support 🙏.
The key is not any one person's story, but rather pieces of all of the stories of everyone on the site who is willing to agree to donate (not for individual profit) the key events points of your story so that we can get the word out to the world about what are collective stories can do to explain what epilepsy really is. If you realize that sharing your story and offering it as part of the collective story to be shared with the world to help other epileptics who were not lucky enough to find… read more
yes i would be willing to :) both good and some bad... maybe a pic or 2 from way back when