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If you doc has a diagnosis of Genralozed convulsion epilepsy without mention of intractable epilepsy (345.10) does that mean she thinks the meds are working?
With interactable Epilepsy meds won't control your seizures ... They may tone your seizures down from a generalized seizure to many absent seizures a day (as I have and prefer lol because my full… read more
I want to know
Some doc. may call them seizures & some may call them episodes I don't know why to me they are a problem that I deal with everyday of my life...... but I'm seizure free knock on wood .......but I… read more
Is it worth paying $$$$ for seizure meds and dealing with continued seizure and side effects if some Epilepsy is Intractable and meds dont work?
What are your thoughts?
To Gemma. It must be cool sometimes to have such different Health Care.
Hi, I have Complex Partial Siezures, I take 2 different types of medicine but I also started taking CBD oils, I don't find the Oil is working. Or is it maybe the Company's I'm using? Or would Vaping be better?
@A MyEpilepsyTeam Member there are different types and strengths of cbd oil. and some have commercial oils, where the cbd itself is less than 100 mg
i have complex partials and i need the strong… read more
I had 2 right temporal lobe lobectomies, removing 13%dead brain tissue of the 18% damaged. Unable to remove all 18% because it was too close, making too risky to area of other dead brain tissue. Or it… read more
I want to be treated my seizures by only CBD oil, as it is organic only, is it possible?
This is a very good question since there are many parts to the brain. They are as follows: corpus callosum, temporal lobe, frontal lobe, amygdala, hippocampus, parietal lobe, and occipital lobe. I… read more
i have had epilepsy since 4 and i was recently diagnosed with temporal lobe epilepsy and my epilepsy specialist said that surgery might be a good option but i also have other types of epilepsy so i dont know if my other types would be affected not only that but i have a traumatic brain injury and acute encophalophaly
Francis2,
I don’t blame You!
I have consistently had a neurologist since as far as forever...I see my current every 3 months or so. Would seeking an epileptologist be more beneficial than just a neurologist?
Epileptologists understand the complexity of Epilepsy. When a Neurologist knows the basics
Does anyone have more than one type of seizure?
Tracy,
Intractable is also Refractory Epilepsy...