Epilepsy is 1 word but we all have it but each is different so we understand each other in one way or another but friends who is our friend some cut you dead some you haven't saw in years and family can and are the same me that's stressful and some family cannot cope with epilepsy so how do they think we cope when there's no surrport and understanding but if other way round I help and just be there so that's why all you epilepsy people are stronger and brave so we have to help and support each… read more

We're young and I know she loves me, but I just worry that she feels like I'm holding her back or something. It's scary to think about it

Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.

I was diagnosed with complex partial seizures in 2005. It was with an EEG test. I have had a couple since then that didn't catch any seizure activity. was told by the head of Neurology that EEG's weren't really a good tool and were archaic. I moved to another state, had another EEG which showed nothing. And now they want me to have another one to catch the seizure I had earlier this year and as lately as Thanksgiving. If they don't capture anything, they will take me off my medications. So… read more

I want him to see what others go through caring for people with epilepsy. He is mad because I told him about what I wrote about him and how it helps to know you are not alone in the struggle in epilepsy. He won't even think about it. I am the one with the problem. Not him he says. My oldest son said I should be grateful. He said if I left my husband, I cannot stay at him. He would be me ina home right away. That hurts. I have been crying for a few days. My other son is a recovering alcoholic and… read more

I ask this because the site owners and techs are not able to provide an additional search option to search for New Members. And there have been too many New Members over the years who have come once or a few times and gotten frustrated and left because they do not get the true benefit of being embraced by a large enough team to not only make them feel welcome but also be able to provide answers and often personal experience regarding any related to seizures (types, symptoms, auras, side… read more

Does anyone who is single find it hard to find that special someone who understands you and what living with epilepsy is like.
It seems to me that as soon as you say epilepsy people run a mile.
Maybe it's me or the fact they don't understand it or scared?

Can someone please tell me how to cope with this. I’m beginning to think i can’t anymore. That she will never improve and possible die. It’s been 4 years and they keep coming every month or so. Full tonic clonic. Why can’t I be strong like other parents. Any advice please. Encouraging stories, anything