I want him to see what others go through caring for people with epilepsy. He is mad because I told him about what I wrote about him and how it helps to know you are not alone in the struggle in epilepsy. He won't even think about it. I am the one with the problem. Not him he says. My oldest son said I should be grateful. He said if I left my husband, I cannot stay at him. He would be me ina home right away. That hurts. I have been crying for a few days. My other son is a recovering alcoholic and… read more
He could join this site. There are a lot of people on here who don't have epilepsy themselves but are the carer of someone who has it.
The only in perso place I know that has support groups for the whole family ànd other families on how to handle living life ŵith epilepsy and one who has Epilepsy is at he Epilepsy Foundation. You can give them a call and find out when the groups get together. They may be helpful to talk to right there! You'll always have much support here!
This site is for people who have epilepsy an people in the family to get advice on it
Just let your husband know you appreciate him. He is an adult and it is really nice you want him to have support. But he may not find a group like this helpful, even though you may.
We all learn, relax, and find ways to get our information differently. There are many ways to find epilepsy information and he may understand he isn’t alone.
As far as you kids go I would not even discuss this with them. They don’t sound supportive and like they have enough going on. It’s ok to let them have their own lives. I’m sorry they hurt you! Kids know our love is unconditional that is why they think can act that way.
You GOT this!!! you are a Warrior
It Really Seems As Though Your Husband Doesn't Really Have Concern Or Care About Your Situation. He Doesn't Want To Deal With You (His Wife) & Your Health Problem That Is Serious & Can Get Worse Because Of Not Getting A Loved One That Simply Doesn't Wanna Deal Or Be Bothered With It. If The Shoe Was On Other Foot, You Will Do All You Can To Help With Understanding. So Sorry That You Are Going Through This. Do What You Have To Do For Yourself & Your Health. Many People Do It Alone, I'm A Prime Example Of Living Alone & Support From Groups Like Ours. Stay Strong, Keep Your Head Up. Stress Will Not Help. 💜💜💐🌹💜💜 I Truly Wish You Well.