I have recently been treated for seizures with antiepileptic medication for a few months. Honestly my neurologist has been quite terrible and adds more stress than benefit. I have PTSD and doctors are hard for me to trust so trying many for different opinions isnt the easiest option. In the past 7 months my current neurologist placed me on 3 medications, changed the doses of all 3,and ended up deciding none worked or that the aide affects outweigh benefit. Side effect after side effect, and more… read more
I will always have to take some prescription medicine. I did however manage to lighten/decrease certain medications/drugs intake by paying more attention to food and natural supplements with my doctors monitoring. If prescriptions had to remain I could still lighten my load by adding suppliments to my daily meds and working on making a change in the medicine cabinet.
You may want to start looking for another Dr., maybe an Epileptologist ( if possible) , instead of a Neurologist. If you live in the United States , you may want to get a hold of the Epilepsy Foundation in your state or nearest you. If you life elsewhere on the globe, then you may want to get ahold of them. Find out who is highly recommended, whether they are a Neurologist or a Epileptologist.
I don’t know how many different meds your Dr. has tried, but until he can find a different but safe path to a different, you need to stay on your current meds. I’ve been on the majority of AED meds on the market and my seizures still aren’t 100% controlled .
Ultimately I would stick with medication, until dr says other wise. I have also had issues finding a good neurologist who actually cares and actually takes the time to answer questions and help, but if you don't like a neurologist you have the right to find someone else. And I know there are some meds that have me bad side affects, but other meds that haven't, or sometimes the dosage needs to be adjusted. Like my dose of keppra was too high and made me exhausted but my neurologist after hearing me out lowered the dose and I no longer feel the exhaustion. And usually if your seizures have stopped for a long enough time period a good neurologist will try to Wein you off the medications. However on-top of medication I have also been uptaking sodium levels in my system. ( Through diet, being careful to not over dose in sodium but slightly higher than normal) After doing research and studying anatomy class. Sodium and potassium help the electrical flow between neurons, through what's called a sodium potassium pump and at one point they thought that sodium should be decreased to stop seizures hense why some of the seizure meds are called "sodium channel blockers" but recent research indicates possibly that someone in the middle of a seizure will most likely stop when the sodium levels are at its highest in the neurons. After that I tried increasing sodium levels ( just like heart rate there's what's called a normal range, but everyone's average is different) and since increasing sodium, on-top of my meds the seizures got better controlled, It gives me more energy, better focus, it has helped with my mood, and motivation, it has helped a lot. So that's one option. Another is keto diet however again follow ups with dr regularly is important with that, I tried keto and it did do something for the seizures but it also made me more tired cause it took away some of the nutrients that I needed to give me energy. Or if you find a good neurologist you could ask if you would be a good surgical candidate, which sounds scary but if you don't want to be taking meds than it would be one thing to look into. Ultimately the medication until u find those options would be best continued, with a lot of out of control seizures it can change things in not great ways. I know within a few years, of out of control seizures my whole left side decreased in strength and coordination, and I process things much differently. Reading sheet music ability has declined, I had to work extra hard to get back to a better ability of swimming. Etc. Out of control seizures over a long period of time can have effects, and it's best to get them under control so until u find a neurologist that you trust and who doesn't stress you out, even if u have side effects or don't like taking your meds I would highly recommend you still try.
My seizures were stress triggered and since coming to faith and finding peace in my relationship with God, I’ve been seizure free and have since gone off of my medication.
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