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Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.
I hope you have a blessed Christmas holiday also @A MyEpilepsyTeam Member
This is a general question of public opinion. I myself always assumed it was, but apparently it's not at least according to Social Security in Indiana that is. I finally decided to apply b/c someone else I know receives disability do to having seizures which started after an aneurysm they also happen to work as well. So I decided to give it a try and was denied b/c epilepsy was not a disability that would stop me from working. So opinions do you agree or disagree on Epilepsy being a disability?
If you are going to apply you need to remember to list everything that is wrong with you. Side effects, down to obesity or high blood pressure etc if they apply everything!!!!! The mistake I made… read more
It took almost 4 years but I was approved for disability after 2 denials but I think mainly it was finally approved due to my age being over 55 because my lawyer reminded the appeals judge of my age… read more
I meet with an attorney Friday who specializes in it. Hopefully it goes well . I'll keep u all updated
I'm 21 years old and live in NC. I've been on a list of seizure meds all of which cause my seizures to increase in frequency, length and intensity. I have no health coverage whatsoever, I can't get referred to an epilepsy center due to this because no neurologist wants to see someone with no income or coverage. I know once I get on the right dosage I'll be able to work again because I've had the concentrates for epilepsy a few times and felt like an entirely new person for like 2 weeks. No… read more
@A MyEpilepsyTeam Member , Your best chance is to have a disability attorney & your local Epilepsy Foundation can recommend one if you contact them. If you provide all your information, like the names… read more
I love working, honestly the social interaction is huge for my mental health. I would hate to totally stop working, especially since I feel like I can, but there are times where I've had to stay out for several days or a week at a time based on the kind of episodes I may have had. Because of that a friend was telling me about their father's experience with epilepsy and how he got on disability. Some of my family don't like the idea, so I would like to find out more to have a more enlightened… read more
Thanks Shannon, I've been out of work since January, recently got a job at a restaurant, but ive had to postpone my start because of medical complications. Im grateful theyve been so understanding… read more
Since I've moved to Australia I've been taking generic keppra and lamictal. I took the same medicine in the USA, but I'm feeling some intense side effects from the generic medicine here. My friend that's a pharmacist said it could be from fillers that are used in the medicine. I'd pay for the name brand but it's very expensive. And then the stress from the financial strain can cause a seizure. Anyway, could there be something in the medicine that I'm not aware of?
All of my meds are in generic my insurance will not paid for brand name
Any advice would be greatly appreciated
I'm not sure if libraries where you are do it but up in Philadelphia all libraries have free events. You may want to check out the library. Some of the events libraries here are searching for a job… read more
I have found lately that after a seizure I am so much more sensitive to criticism and to well basically anything emotionally draining.
Am I the only one?
I'm hoping this is normal!
I feel you
