I have had epilepsy since I was two. I did not really understand my epilepsy for a long time when I was a child. I have a learning disability, that is really annoying. My epilepsy is an itch You… read more
Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.
I hope you have a blessed Christmas holiday also @A MyEpilepsyTeam Member
I was diagnosed at a year old . After our dog saved my life . Has anyone been living through Epilepsy since day one ?
So awesome!!
I have only been diagnosed for two months and am really finding it hard to stop my worrying and just would like to know if anyone has any advice about how they began to accept their diagnoses? Thank you
Holy Molly you’ve been thru a lot!!!Love your attitude!!! Thank you so much for sharing your journey and knowledge. He is on clinical keto diet close to 4 grams of fats for every 1 g of protein. It… read more
I was diagnosed with epilepsy at 22. No injuries
Or anything. I wonder if anyone was also diagnosed out of no where and what medicine you’re on?
I was diagnosed at three years old. I never knew the cause for 40 years. I felt it had to be my birth weight, 12 lb. 9 oz., being pushed down the stairs when I was two or a 105 fever when I was… read more
I’ve have been losing feeling in my legs at least 1 day a week on days I go in to work. I work at 5am. My legs just go numb and they go side to side like someone who is paralized. I have to catch myself before I fall. It doesn’t last that long. It’s pretty scary. I never admit anything scares me. I’m trying to be more open in my life. I’ve never been open about my epilepsy. I feel I’m getting worse. It just started happening a few weeks ago. Does this happen to anyone else?
I was diagnosed with Epilepsy in 2012/2013. I have been seizure free since then on Keppra. I have since been diagnosed with Lyme Disease, Mold/Mycotoxins disease, and, Chronic Fatigue Syndrome. I am searching for answers to see if anyone else has run into information about the correlation of these disease. Thanks
Hi there. Would you mind posting the link to the research paper? I’m very interested in reading on the possible link between these two conditions. I’ve been doing some research but I can’t find much… read more
Since I've moved to Australia I've been taking generic keppra and lamictal. I took the same medicine in the USA, but I'm feeling some intense side effects from the generic medicine here. My friend that's a pharmacist said it could be from fillers that are used in the medicine. I'd pay for the name brand but it's very expensive. And then the stress from the financial strain can cause a seizure. Anyway, could there be something in the medicine that I'm not aware of?
All of my meds are in generic my insurance will not paid for brand name
I do take my meds for my condition, but I do my daily routine of prayer and bible study, I am a Catholic christian mix and I am not perfect and do sin, but that is my first above all that I go by, I… read more