How Do You Feel About Yourself Now That You've Been Diagnosed With Epilepsy ?? | MyEpilepsyTeam

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How Do You Feel About Yourself Now That You've Been Diagnosed With Epilepsy ??
A MyEpilepsyTeam Member asked a question 💭
posted October 26, 2020
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A MyEpilepsyTeam Member

I just keep moving forward eventhough i’m always dealing with weekly challenges. Things may seem hard but you need find ways to cope with life like hobbies, exercise, and having fun. I have many hobbies including: bicycle road racing, kayaking, canoeing, farm chores, skiing and snowboarding, art.

posted November 10, 2020
A MyEpilepsyTeam Member

I feel like a burden at times and useless with being unable to work/drive. Taking all of these medications has a sever negative effect on me mentally and causes suicidal thoughts at times. I am getting better at adjusting, expecting and dealing with my seizures though. They do not have as negative effects on me and I recover from them faster than before.

posted October 26, 2020
A MyEpilepsyTeam Member

Well I was born with it but was diagnosed around age 1 . I went through my ups and downs. I started to notice I was different, when starting in elementary school. Then it got harder in Jr. and Senior High school . I even spiraled downward, until I started going to an Epilepsy support group. That helped me learn how everyone is similar and different with Epilepsy. It helped me realize that I wasn’t the only one . Not too long later, I started to learn how to cope With my epilepsy.

I already knew how to do thing in alternative ways . My next step was finding the right place to move to when living on my own . A place that will make it easy getting around , besides using my family and friends. .

Today I now have my own family and I realized , that not only is Epilepsy a difficult lifestyle, but everything we have to struggle through with Epilepsy is a fact of our life.

posted October 26, 2020
A MyEpilepsyTeam Member

That's Why Im Enjoying This App. So Far Because I Can Connect & Learn More About How Epilepsy Has Effected Others.

posted October 26, 2020
A MyEpilepsyTeam Member

I started having seizures when I was 3 yrs. old. Dr got my seizures under control quickly.I don't remember being diagnosed. I had 9 years with no seizures. Then I hit puberty & all hell broke loose. During my teen years I had a lot of seizures & that really messed with my self confidence. I felt like a misfit through most of my teen years. I gradually decided that I'd better figure out how to deal with Epilepsy & get on with life. Some days, it's really hard not to be angry with the limitations & problems that go with Epilepsy. But it's worth fighting your way through. Most of the time I can be happy & content with my life

posted October 26, 2020

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