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Types of treatments for complex partial seizures, evidence of temporal lobe epilepsy?
That’s great!! I believe that’s what my neurologist is going to put me on
Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.
I hope you have a blessed Christmas holiday also @A MyEpilepsyTeam Member
Temporal Lobe Epilepsy
After an all-night focal impaired awareness seizure, (my first diagnosis, obtained by EEG), I woke up in the hospital. I worked in that very hospital in Respiratory Therapy back in the 80's, so I'm… read more
I at one time was told I had grand mal, then went to petite mal now I'm told I have generalized primary seizures. I tend to not understand how this is possible and wonder could doctors misinformed me or is it actually possible for the diagnosis to continuously changed and why/how does this happen. what causes this?
Yes the seizures can change. Mine did from absent to complex to complex and fall.
Years ago I had mood problems causing me to be temperamental which triggered my seizures at school, making my life even harder to live with, cause no one understood my health problems, I was put on Valium as well as phenytoin ,and I was ill treated by my family, and at school cause I had a seizures, but now I live alone only take anticonvulsants and I feel calm and relaxed, over 50 years later .
@A MyEpilepsyTeam Member @A MyEpilepsyTeam Member true... my nickname all throu school (both elementry and high school) was 'space case' (i have warning seizures). it didn't bother me much but still… read more
I seem to have different types of epilepsy? Is that possible or am I not remembering them accurately?
Yes it is possible to have more than one type of epilepsy
I also have T.L.E. I HAVE the R.N.S implanted in my skull. I've had episodes since 1-28-2014. I have episodes on both sides of my brain,I have blackouts, as well as seizures in my sleep. My seizures… read more
What are the chariteristics of temporal lobe seizures
I get these too for 25 years and thought i was having ptsd it was a relief to find out it was seizures and i wasnt crazy!!!
When I was young, I was diagnosed with petite mal based on eeg and symptoms. But in my mid teens, my diagnosis was changed to temporal lobe, again based in a different eeg and symptoms. Has this happened to anyone else? And if anyone has an answer as to why this happened, I would love to hear about it!
I wasn't told outright but for years my paperwork listed mine as "drug resistant" generalized epilepsy
I have been referred for some testing because of the ways the pattern and severity has changed… read more
My doc told me it was my "Emotional Side" (Right Side) of my brain where my Seizures come from. Was told to try to control my emotions. Any ideas?
My seizures mostly re located in my left temporal lobe of the brain..
But I have a couple o smaller areas too