I have not been on to provide any answers and words of support for my team on the friends on my team because I cannot understand myself after the time in the hospital. The Tegretol/Carbamazepine is gone and has been replaced with Keppra, but I don't understand what are side effects of Keppra and what are simply after effects of the EEG LTM. Do you have any suggestions on finding out which?

I've been on it for years and my seizures keep getting worse. Now I'm having multiple forms of seizures instead of just tonic clinic like I had originally. And Dr keeps upping my dosage instead of switching meds even though I've requested it repeatedly. I sought out a different Dr and the new one kept me on same med (zonisimide) and dosages and seizures keep getting more frequent and worse and are now coming in clusters that sometimes last for a week!. Only thing nee Dr did was add Nayzilam… read more

So after reading I've read many say they were out or doing something they had a siezure and kept doing what they were doing. Other than now knowing that aoras don't think I'm spelling correctly, are a siezure I guess..... If not what does everyone mean? They weren't flopping on the floor..... I now that's not the only type but I'm still confused.

Thanks for helping me try to understand. I figure asking here directly would help me more than a million things on the G search engine

Thanks… read more

My seizures last about 5 minutes (or less), although the seizure stops I still remain unconscious for long (anything between 10-40 minutes), should someone seek medical assistance or is it best to just to just wait it out. My neurologist says there is nothing they can do so best just to wait. It’s a terrible feeling and it’s a struggle to regain consciousness, move my limbs and open my eyes. I just want a second opinion to set my husband at ease when it happens.

Those of you that have had epilepsy for a long time, how often do you need to change medication? Does one work for quite a few years and then your seizures come back, and you have to try a new med? Is it common for people’s bodies get used to the meds?

I'm finding it hard to keep a relationship due to epilepsy I'm afraid to tell them incase they run or get freaked out over it. It's frightening any advice

Hi, I am scheduled for a video EEG at the end of March. I wish it wasn't so far out because it's causing me some anxiety. What could the results be, and what will they do after that? Adjust meds, recommended surgical procedure or surgery? For those that had it, what did they determine and what happened next? Thank you.

Does anyone who is single find it hard to find that special someone who understands you and what living with epilepsy is like.
It seems to me that as soon as you say epilepsy people run a mile.
Maybe it's me or the fact they don't understand it or scared?

Something some said got to me. Not all forms of epilepsy make tou loose consciensness. I am always alart and and aware of several of my triggers. My sezuires are either absent, mind staring or simple/conplex jerks (like a cold chill).

I have complex partial seizures. My neurologist and I have talked about my license as I have brought it up. He sees no reason to revoke my license and my diagnosis does not require them to be.

Anyone else still have their license?