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How Do You Know You Had A Siezure?

How Do You Know You Had A Siezure?

So after reading I've read many say they were out or doing something they had a siezure and kept doing what they were doing. Other than now knowing that aoras don't think I'm spelling correctly, are a siezure I guess..... If not what does everyone mean? They weren't flopping on the floor..... I now that's not the only type but I'm still confused.

Thanks for helping me try to understand. I figure asking here directly would help me more than a million things on the G search engine

Thanks… read more

A MyEpilepsyTeam Member said:

www.epilepsy.com
An Aura is many things. They can range from a smell that no one else smells, (i.e. burnt rubber, or a fishy smell that’s just to name two). Aura’s also May involve tasting something metallic in your mouth or even something as simple as a flavor of some sort that is not usual.
Take for instance, one of my Auras is the smell of isopropyl alcohol. The (95% kind). Yes I can tell the difference in the power of the smell. No one else will smell what I smelling. When this happens to me it is a warning that a Larger seizure may be coming. For me that is my warning of a Grand-mal (aka Tonic Clonic) The one where I fall and begin to shake all over.
Another type of Aura I have is numbness and tingling behind both of my ears, (which is still part of my Temporal Lobe) -sometimes I don’t have a bigger seizure after that, and other times I blackout and can’t hear anything and also lose tract of time (memory). I have other Auras as well but to many to post here. Déjà vu is another type of an Aura. It’s where you feel like you have been somewhere or experienced something before but it has never actually happened.
These are just some examples of what an Aura is like. Most of the time when an Aura comes , the person having the Aura is fully aware of what is happening to them, but may not realize that it is a small seizure.
I hope this helps explain what an Aura could be. Numbness, tingling, & dizziness are also other examples of an Aura. (Petite-mal).

posted 2 months ago
A MyEpilepsyTeam Member said:

Forms of Epileptic Seizures (Epilepsy Foundation)
https://www.epilepsy.com/what-is-epilepsy/seizu...

Many seizures are not falling seizures. And there are some of us who have full general seizures immediately followed by Focal Onset Impaired Awareness Seizures (complex partial seizures) and those who have Nocturnal seizures (when asleep), thus if someone else does not tell us about the seizure, then we have no idea that we have had a seizure.

And in the cases of the Focal Onset Impaired Awareness Seizures (complex partial seizures) and other falling seizures, we can interact with others, but who you are talking to is our subconscious mind, thus the person having the seizure has no memory of the conversation or anything else that happens. And that is just the epileptic seizures.

There are also the common non-epileptic seizures
Psychogenic Nonepileptic Seizures (PNES)
https://www.epilepsy.com/diagnosis/imitators-ep...

There are a whole variety of these seizures many of while do not involve a fall too.

And then there are the seizures caused by a medical condition or during a medical crisis (usually seen on tv shows and movies are the grand mal seizures because they have the most dramatic effect) that have a variety of forms.

posted 2 months ago
A MyEpilepsyTeam Member said:

Im one of these 🙋🏼‍♀️ i was originally diagnosed complex partial when i was 8, 2008, and I turn 23 on the 16th. I started by having absent, or petite mal seizures, the first time i was playing softball, and many more happened there. Id spin in a circle, rub my stomach, tug my shirt and smack my lips my mom said. after the dr sent us home, my mom researched herself and came to her own conclusion and told him she believed i was having seizures. He sent us to a neurologist at children’s hospital of new orleans, 2 hours away of course lol. i was tested, diagnosed and put on carbotral/carbamazepine. It worked to control my seizures immediately, but i began having auras. We told the dr and we tried multiple different medications along with carbotral because it technically did help, but i still had auras with it. I only got a feeling in my stomach, like an uprising/ the kind of feeling you get on a rollercoaster, deja vu is how they described it also. I was always aware during these though but they always affected my life no matter how small. I was taken off carbotral eventually and im currently on vimpat 300mg BID, Onfi 40mg BID, and trokendi 450mg pm -ive been on trokendi since carbotral, weve been discussing removing or replacing it, it was mainly for migraines. I still have auras only today. I keep track for my dr. Ive had 2 unsuccessful left temporal lobe resections, and a vns implant that doesnt work, im hoping for an rns but my next appointment isnt until august, its being discussed though, trying to take my meds on time more. But i still cant drive with this ot be independent for the most part. I still rub my stomach during my auras because of the uprising feeling but theyre no longer than 30 seconds. My last absent was in 2017, thats when we started changing meds.

edited, originally posted 2 months ago
A MyEpilepsyTeam Member said:

I have auras. They are also called focally aware seizures. Unfortunately, there are 12 different types of seizures. So it gets confusing. My seizures started out that way when i was 12yo. Now I'm 27yo. I would get auras/ focally aware seizures: I would/ do feel as if i was in a dream, the things around me weren't real, or I didn't even feel real. The Drs. Dismissed these as intense migraines. When I was 20yo, someone witnessed me having a grand mal/tonic clonic seizure, and "Ooooh those were auras.". Then I was actually diagnosed with epilepsy. Sometimes I just get auras. They're extremely annoying, but you can still work and be physical through them. FOCALLY AWARE seizure. I might have a grand mal later that night. That doesn't happen often though. If I have them for a couple of days, I tell work that i might not make it in tomorrow.

posted 2 months ago
A MyEpilepsyTeam Member said:

Well, I am no expert but if I have a full blown seizure, I won’t have any recollection of it at all. I’ll just be waking up on the floor. On the flip side, I’ve had minor spells in which I space out but I snap out of it. I won’t recall ever having one, even if the spell was only a couple seconds long.

posted 2 months ago
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