Quick Links
Resources
About MyEpilepsyTeam
Powered By
I took Dilantin for a few years as a child. I'm not sure why my doctor switched me from Dilantin to Tegretol, but I'm assuming it's because I broke through on it. I really liked it, but I suppose what I'm on now is best for controlling my seizures.
Hi,
I recently wanted to add CBD oil to my regime instead of increasing my Toprimate.
Before I was diagnosed with seizures I had tried thought cloud CBD brain and ended up in the ER for what they thought was a pulmonary embolism. I thought it was just by chance because I had also had dental work done that day and was given epip.
Anyway I bought Charlotte Web CBD which is heard great things about. Gave it a try the other day. I had seizures for 2 days and then ended up in the ER couldn't… read more
I vape CBD every and haven't had an issue so far.
I am currently on keppra 3000mg a day clobazam 20mg at night and lamotragine 409mg a day plus i so take 2mg lorazepam at night and i have 10mg of midazolam as emergency medication also have a vns anyone similar to.me x
My Daily Medicine List
1- Dilantin ((Brand Name) caps 400mg. Per day
2- Lamictal (Brand Name) 700mg. Per day
3- Verapamil 80 mg. Per day
4- Zone gran 400mg.per day
5- Dilantin (chewable) 50mg. Per day
6- Tranxene 7.5 mg per day
7- Singular 10 mg per day (Asthma pill)
8- 2 puffs Advair 2 times per day (Asthma)
9- Sleep with BIPAP at night (improves sleep)
10- As needed to stop seizures 2mg Lorazapam
(Which is only given when I have clusters
Or a longer than normal seizure,… read more
Wolf2677, I am 59 almost 60-10/10/17. For me its been alternating medications and dosages. So far we haven't discussed surgery. Prior to my marriage seizures were about six weeks apart. I got… read more
yesterday i saw a specialist with my epilepsy, me and her decided that i should try Keppra.
But i didnt realise that there are so many negative effects with mood while taking this medication, has anybody any experience please with this medication or advice, i would be very greatful.
I've had the mood swings while taking Keppra
Or on another note, has anyone ever been a little scared of telling someone you feel like you’re about to have one but end up not? Sometimes I feel like I shouldn’t tell my parents or sister because then they’re going to overreact a little after the feeling went completely away.
Debbie- look into PNES, it's psychogenic non epileptic seizures. I recently found out symptoms I was experiencing here lately was small seizures, come to find out it was psychogenic non epileptic… read more
I'm on Keppra 500 mg x4 am x4 pm I see my Docton on Tuesday is anyone on keppra with another med to help stop seizures