My Daily Medicine List
1- Dilantin ((Brand Name) caps 400mg. Per day
2- Lamictal (Brand Name) 700mg. Per day
3- Verapamil 80 mg. Per day
4- Zone gran 400mg.per day
5- Dilantin (chewable) 50mg. Per day
6- Tranxene 7.5 mg per day
7- Singular 10 mg per day (Asthma pill)
8- 2 puffs Advair 2 times per day (Asthma)
9- Sleep with BIPAP at night (improves sleep)
10- As needed to stop seizures 2mg Lorazapam
(Which is only given when I have clusters
Or a longer than normal seizure,… read more
Wolf2677, Isn't there any way that the neurologist can combine some of those Dilantin Capsules together? That is quite a list of anti seizure medications and supplements. My husband has blood pressure and back problems and between his medications, my medications , and our supplements the house looks like a part of the pharmacy. Also it seems unusual to combine Brand Name and Generic Anti Seizure Medications together.
When I took Generic Depakote it permanently destroyed my previously achieved seizure control and it eliminated my ability to drive. Have that neurologist check your medication list out-I didn't go to medical school but I do specialize in " caution and questions "-sometimes too many to suit the doctors. Luckily my current neurologist and my husband share a common experience in both being retired Navy veterans.
Wolf2677, I am 59 almost 60-10/10/17. For me its been alternating medications and dosages. So far we haven't discussed surgery. Prior to my marriage seizures were about six weeks apart. I got married on June 18, 2016 and that seems to have lengthened the time between seizures. I've had as long as five-5-months between seizures.
This recent nightmare with Social Security insisting that I wasn't eligible for benefits from April 12, 2012 to April 12, 2014 and the characters at the law firm, the officers at the bank for my Trust, and my Trustee refusing to help me resolve the mess that they created have increased the stress a lot.
Wolf2677 how many seizures & what type do you normally see in a month? Also, I am nearing 48 and they are trying to talk me into the RNS or VNS. How old are you? My husband of 26 year and I are not sure we want to do such invasive surgery at 50. LOL. ❤
I've asked my neurologist this same question about reducing meds. If you hadn't heard I had a Neuropace RNS implant put in in Nov. 2016, but then because of a medical emergency with me Jan. 25, 2017 I had to have removed due to a bacteria found in my Spinal Tap then, which was diagnosed to a lead of the RNS. I've recovered dramically and I'm getting back to myself again. ***This is a Priority on my list coming up to have my "Medicine Evaluated" since I'm on so much. I do feel a lot better with no "machines" in me now. VNS was in from 12/1999 and then removed when RNS was implanted 10/5/2016.
God has a plan for me, and I'm not having anymore surgeries as they have not helped. I think if I could get off some meds that would be great too.
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